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Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6, 2024

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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001sarahsantana | @001sarahsantana | Aug 1, 2024
In reply to @palermo1 "My Dr send a prescription to a Canada pharmacy, they called me I paid them after..." + (show)
Profile picture for palermo1 @palermo1

My Dr send a prescription to a Canada pharmacy, they called me I paid them after a long month it got here so for refills make sure you order in advance, your Dr needs to send script to the Canadian pharmacy, you can't get it a a normal pharmacy

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Do you know the name of the pharmacy?

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1 reply
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artemis1886 | @artemis1886 | Aug 1, 2024
In reply to @peggyjean "I was diagnosed four yrs ago, but had symptoms much longer than that from a surgery..." + (show)
Profile picture for peggyjean @peggyjean

I was diagnosed four yrs ago, but had symptoms much longer than that from a surgery for my hiatal hernia…. portions really matter & for me I eat frequently & small…. I don’t mix meat with other foods…. No fresh veggies or fruits…. If I do they are really cooked or baked…. Chicken, fish, eggs, or ground meats…. I actually can eat small amounts of steak occasionally, but not regularly…..mostly I nibble some of my husband’s….. Biggest help has been walking after eating…..life saver…. Cannot take any meds per RX. except Zofran will settle my stomach & helps if bloating gets uncomfortable….
Something also that helps is I fast most days & only drink coffee or tea for breakfast until about noon or so…. Usually there is plenty of food left in my stomach from day before….. I try not to eat past 6:30 pm, but do have plenty of fluids….. another thing is I don’t drink fluids while eating a meal…. I fill up too fast….. I did a lot of research on line & my own listening to my body…. My gastroenterologist was no help just dismissed me with if you can’t tolerate the meds, then I can’t help you…. From Mayo Clinic I found out that I’m lactose intolerant & that helped, but their dietitian was no help!!!! I knew more than she did through all my research & what I could tolerate from my own eating practices….. write it down & any symptoms that you did or didn’t have…. I know it helped me that I’m a retired RN, but when you’re the patient it gets real…. Remember though you are in control & work what works for you. Walking has been the real help & small portions….. Big Big….Family Support is My Biggest Support…. Good Luck….

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Just out of curiosity being a retired RN have you noticed doctors don’t seem to listen to you? That’s one of my problems. A doctor prescribed Effexor for neuropathy contraindications in several areas. One allergic to all seizure meds and the drug increases seizures. His response was I tried to help you there’s nothing else that can be done.

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001sarahsantana | @001sarahsantana | Aug 2, 2024
In reply to @hopeful33250 "Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to..." + (show)
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Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to be prescribed by a doctor. Here is some information about it from the Drugs.com website,
https://www.drugs.com/domperidone.html
Did your doctor give you a prescription for this medication? Do you live outside of the U.S.?

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Thank you, I will contact my doctor to see if he wants to do that.

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001sarahsantana | @001sarahsantana | Aug 2, 2024

I really appreciate the support of you guys. Thank you

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palermo1 | @palermo1 | Aug 2, 2024
In reply to @001sarahsantana "I really appreciate the support of you guys. Thank you" + (show)
Profile picture for 001sarahsantana @001sarahsantana

I really appreciate the support of you guys. Thank you

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Your welcome

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rashida | @rashida | Aug 5, 2024
In reply to @hopeful33250 "Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to be prescribed by a doctor. Here is some information about it from the Drugs.com website,
https://www.drugs.com/domperidone.html
Did your doctor give you a prescription for this medication? Do you live outside of the U.S.?

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@hopeful33250 @001sarahsantana yes, drugs.com is a very helpful website. Gives you good information on all medications so I have registered with their online newsletter too. I even have all my drugs listed on that site, and it shows me if I have any interactions to them! They also have a pill identifier page which is helpful if you are not sure your prescription has been filled correctly with the right pill/capsule. I love that site!

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artemis1886 | @artemis1886 | Aug 5, 2024
In reply to @palermo1 "www.discountdrugsofcanada.com" + (show)

Thank You! I have not been able to get my stomach medicine filled due to insurance and prior authorization.

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palermo1 | @palermo1 | Aug 5, 2024

Hi if you're ordering from Canada, since its not approved in USA, you have to pay for it out of pocket, I paid 100.00 for 400.pills, good luck

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michaelgarr007 | @michaelgarr007 | Aug 10, 2024

Although I haven’t been diagnosed with gastropares, I am on Metformin and am having nausea issues and vomiting up to 14 hours after I have eaten. I have been diagnosed with pre diabetes. This digestive issue comes and goes and I haven’t been able to diagnose it for myself what would be causing this. The Doctors haven’t been able to diagnosis this as of yet either. I am on several different medications as I’ve got heart disease and early Alzheimer’s disease. I also take medication for stress and anxiety. I am a 64 year old white male. Looking forward to your replies.

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