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Lichen Planopilaris...newly diagnosed

Posted by ginyer @ginyer, Feb 17, 2020

Hi, new to the site and new to the diagnosis. Just was hoping to touch base with anyone else that may have dealt with this or be dealing with it. I've had thinning of hair over the years but it would always stop and some would come back, but I would say this "dropping" as I call it has been going on over a year now...I've seen the dermatologist in the past and we never knew what caused it. I was at dermatologist for a completely different issue, no intention of her looking at my scalp, but she did and immediately wanted to take a biopsy. She said the name and said, no, this was a brand new issue, and the biopsy came back as the lichen planopilaris. I just had my first set of scalp injections today. Anyway, if anyone else is dealing with this, would be very interested in treatment plans, etc.

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sophie7 | @sophie7 | Jul 18 6:10am

That is awesome you can't tell you have hair loss 😊. What are all the supplements you take? Anymore tips are greatly appreciated.

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jwfletcher | @jwfletcher | Aug 1 2:55pm
In reply to @clora "I was diagnosed in January 2021 with 2-biopsies. I had been losing hair for a few..." + (show)
@clora

I was diagnosed in January 2021 with 2-biopsies. I had been losing hair for a few years and my original Derm did not feel I needed it as he would refer to my scalp burning as being “angry” due to many chemical allergies. Obviously this was wrong. I am not a candidate for Placquenil. My new Derm had me start with Doxycycline mono 100mg, twice daily for 3 months. Just recently it was reduced to 1-capsule daily. I was also given Clobetosol foam PRN. which temporarily calms the area. Since reducing the Doxy I have had more hair loss. Waiting to hear from my doc. Unfortunately from what I have read and been told there aren’t too many options for me.

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Dear friend, I am sorry about your hair problems. I believe you are a woman like myself, and our hair is our treasure. You have my sympathy. I also have chemical allergies, and they have taken over ever area of my life, including hair, clothing, drugs, medical equipment, etc. Do you have similar problems? My doctors tell me there are no treatments or ways to reverse them. Is this the same for you? I don't know how I will get through life this way. Every day is such a struggle. Best of luck with your hair and your health. Sincerely, Julie

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