Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for artemis1886 @artemis1886

Is yours cardiac autonomic neuropathy? It is different since it affects the autonomic nervous system. It’s not getting better it’s getting worse. We repeated the one month holter monitor test along with the tilt table test. I have seen a cardiologist and electrophysiologist. I was sent to Stanford Hospital to confirm it. I am four years out.

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I have had a cardiologist ask me to do a cheek swab for this type of neuropathy because I have had open heart surgery and my neuropathy got worst after the surgery but have not paid for the test results or do not know if I will. So many causes for this horrible disease. Being sprayed with Agent Orange in Vietnam probably didn’t help!

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Profile picture for artemis1886 @artemis1886

Have you ever had the EMG/nerve conduction test by a neurologist to be diagnosed with neuropathy or have the skin biopsies for small fiber neuropathy? These test are done by a neuromuscular neurologist to confirm diagnosis.

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Yes and it was now confirmed-now what?? The Dr said they think it is auto immune? What does that mean and how is it treated-haven't heard anything else from them???

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Profile picture for glennathill @glennathill

I use cbd salve and it works great but doesn't last long

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The oil can be used 2 or times a day. I use morning and night ususally.

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Profile picture for bettyg81pain @bettyg81pain

Yes and it was now confirmed-now what?? The Dr said they think it is auto immune? What does that mean and how is it treated-haven't heard anything else from them???

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Anne Oaklander at Mass General did some work with a bunch of other folks on Covid, autoimmune disease and small fiber neuropathy. IIRC, they only tested people with confirmed SFN. The study showed good results treating with IVIG and / or steroids. I forget the details, but it shouldn’t be too difficult to google. Good luck.

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Profile picture for bgator @bgator

I have had a cardiologist ask me to do a cheek swab for this type of neuropathy because I have had open heart surgery and my neuropathy got worst after the surgery but have not paid for the test results or do not know if I will. So many causes for this horrible disease. Being sprayed with Agent Orange in Vietnam probably didn’t help!

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The autonomic neuropathy is not done by a genetic check swab.
It can tell you if it’s genetic but that’s it. Had it done.
Biopsies for small fiber neuropathy. I have had two one month holter monitor test showing I go between bradycardia/tachycardia my blood pressure is crazy it was 150/100 for two weeks they put me on BP medication then it bottom out 90/50 passed out and now it’s normal. They performed a tilt table test and sweat test on me for a diagnosis of cardiac autonomic neuropathy. The neuropathy moves into the autonomic system affecting gastroparesis, bladder, kidney, heart and brain where there are nerves. My balance is off the motor part of the neuropathy causes tremors.

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Autoimmune is what I have.
Blood work for over three years elevated ANA, Sed Rate, CRP and complement c real high those are inflammatory markers. I have a list of labs that I had to have run buy the foundation of pn. I lost count of the tubes of blood after 10.

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im here in t johns nl canada and have hd the same results my dr who wont acknowledge the vaccine injury finally sent me to a internal med dr same story she said i possibly had parkinsons and put me on levecarb i requested to see a neurolgist finally she ddi now on a year on the waiting list im plagud with so many things i have no life past 2 yrs i had 2 moderna shots nevr again now my stomach is terrible headaches pain on left side of my boday etc where do we go for help its depressing

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Had neuropathy long before the vaccines were on the scene. And sadly, have yet to find a cure or treatment.

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Profile picture for myrtannhynes2023 @myrtannhynes2023

im here in t johns nl canada and have hd the same results my dr who wont acknowledge the vaccine injury finally sent me to a internal med dr same story she said i possibly had parkinsons and put me on levecarb i requested to see a neurolgist finally she ddi now on a year on the waiting list im plagud with so many things i have no life past 2 yrs i had 2 moderna shots nevr again now my stomach is terrible headaches pain on left side of my boday etc where do we go for help its depressing

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I am so very sorry that you are suffering so much. It must be very frustrating trying to see a specialist with your healthcare system.
Go back to the primary and see if some of your stomach issues can be resolved. It is my understanding that Parkinson medication causes some issues in persons. Only a neurologist can diagnosis Parkinson's or any other neurological diseases. Is there any way you can see where you stand on the list?

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Profile picture for bustrbrwn22 @bustrbrwn22

@kathleen123 Please keep us posted. We care

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Tengo neuropatía de fibras pequeñas que afectan los movimientos de mis piernas ,que no los puedo controlar. Camino con movimiento espasáticos pero no tengo el más mínimo dolor. Pero cada vez voy perdiendo más sensibilidad sobre todo en la planta del pie. Pero no es grave. Insisto , no tengo dolor. Esperé bastante para vacunarme y recibí dos dosis de Astra Séneca. No tuve ninguna reacción negativa. Pero debo confesar que me costó bastante convencerme de aplicarme la vacuna. Tenía temor de complicar mis problemas. Pero no fue así.

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