Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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@lbtw

I was also very hesitant to start Evenity. I had my third Injection yesterday and as of yet no side effects. My arm was sore after first set of injections but nothing after that. Good luck

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@lbtw Thanks for the encouragement! I pray that you have smooth sailing through the rest of your shots along with measurable improvement!

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@kristie2

I just finished Evenity . I was told I would go to reclast and my endo just told me that I will do Prolia for a year or two then I will move to the reclast .
How did you tolerate the Prolia ?

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Hi @kristie2 did your endo give a reason for the advantages of 1-2 year prolia then reclast? If you dont mind, could you share your bmd % improvements with 12mo evenity? Thank you very much!

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@mayblin

Hi @kristie2 did your endo give a reason for the advantages of 1-2 year prolia then reclast? If you dont mind, could you share your bmd % improvements with 12mo evenity? Thank you very much!

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The endo felt that the Prolia would continue to build bone where the reclast would just maintain it . Hopefully my insurance will approve another DEXA . It’s scheduled in about 3 weeks .

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@mayblin

Hi @kristie2 did your endo give a reason for the advantages of 1-2 year prolia then reclast? If you dont mind, could you share your bmd % improvements with 12mo evenity? Thank you very much!

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My endo was always against Prolia but she said a new study came out and this was the best way to go . That the longest I would be on is 1-2 years before switching. My t score of my spine was -4.6 when I started Evenity .

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@kristie2

My endo was always against Prolia but she said a new study came out and this was the best way to go . That the longest I would be on is 1-2 years before switching. My t score of my spine was -4.6 when I started Evenity .

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That's good to know, thank you for sharing this info! If that will maximize bmd improvements then that's great! Curious, will you be monitored by bone markers for the timing of initiating prolia?

Wishing you great improvements on next dexa scan!

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@kristie2. Did I miss something? I am confused. Where does the Evenity come into your story? Did you start with Prolia?

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@mayblin

That's good to know, thank you for sharing this info! If that will maximize bmd improvements then that's great! Curious, will you be monitored by bone markers for the timing of initiating prolia?

Wishing you great improvements on next dexa scan!

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I have always had my bone markers done . Prior to starting Evenity my CTX was 933, P1NP was 77. Then 4 months later CTX 316 , P1NP 67 . Then in May CTX 138, P1NP 59 .
I will actually have my bone marker test the morning before I get my Prolia injection . My endo has been ver agreeable with having these done .

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@gmom14

@kristie2. Did I miss something? I am confused. Where does the Evenity come into your story? Did you start with Prolia?

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No I have never had Prolia . I started with Evenity and now will have Prolia for 1-2 years and then move on to reclast .

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@kristie2

The endo felt that the Prolia would continue to build bone where the reclast would just maintain it . Hopefully my insurance will approve another DEXA . It’s scheduled in about 3 weeks .

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Prolia is not a bone builder. Tymlos, Forteo and Evenity are. Please research Prolia before beginning it. It can maintain bone gains but will not build new bone.

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@dooshie

Prolia is not a bone builder. Tymlos, Forteo and Evenity are. Please research Prolia before beginning it. It can maintain bone gains but will not build new bone.

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Prolia has approximate increase in spine bone mineral density . 6-8% during the first two years .

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