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Post Interferon Syndrome

Infectious Diseases | Last Active: Oct 7 9:13am | Replies (536)

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@ldestella

Hi-I’m so very sorry that u r going thru this also!! There r probably over a million of us suffering 🤬
Regarding ur bone pain. I am fixing to have my 7th surgery on my bones, interferon destroyed my collagen, the matrix that makes EVERYTHING in the body…bone, skin, nails, organs, etc the pain is overwhelming! It also destroyed my immune system n ive been on over 165 antibiotics in 61/2 yrs n get lifetime infusion’s of antibodies! This just barely touches all the other issues 🤬 I encourage u to get with me as I was a practicing RN with a master’s degree but way to sick now but I’m sure I can help u or at least answer some questions for u xo

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Replies to "Hi-I’m so very sorry that u r going thru this also!! There r probably over a..."

That would mean so much to me to have questions answered I think it's the fact I've struggled with this over 13 years with no real answers knowing that I'm not alone in this gives me comfort