1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

omega101 | @omega101 | Jul 30 8:43am

Wow!! So difficult!!
I guess the question is now, what are they doing to help you? Gabapentin, Nortriptyline, Acupuncture??? Do you live close to a metropolitan city?

REPLY
omega101 | @omega101 | Jul 30 8:48am
In reply to @glennathill "Here they don't even acknowledge long covid I use that term they never use it or..." + (show)
@glennathill

Here they don't even acknowledge long covid I use that term they never use it or acknowledge it. They actual played the game my regular doctor sent me to neurologist they test me for neuropathy which was negative then send me back to the regular doctor then he the regular doctor sent me back to the neurologist I did that four times I'm done. They said you probably have small nerve neuropathy but we could test for it but it won't tell us where it's coming from. So here we are.

Jump to this post

So sorry you are being dismissed! Are they giving you any medicine, i.e., Gabapentin, Nortriptyline, Acupuncture?
Do you live near a Metropolitan City?

REPLY
1 reply
dhamil | @dhamil | Jul 30 8:50am
In reply to @swilkins1974 "My husband was the same with minor numbness in his mouth after 1st vaccine. After 2nd..." + (show)
@swilkins1974

My husband was the same with minor numbness in his mouth after 1st vaccine. After 2nd vaccine his nose, mouth tongue were numb and tongue on fire when eating. No one would say it was vaccine but it had to be. Problem lasted about 3 years. A naturopath suggested magnesium. Believe it or not, it worked. Maybe a coincidence but it’s gone. He continues to take the magnesium.

Jump to this post

What type of magnesium does he take? I take magnesium citrate but unfortunately it hasn’t helped me with my neuropathy. If he found relief with another kind I’d like to try what he’s taking.

REPLY
1 reply
hello2 | @hello2 | Jul 30 9:06am

I use Frankencense oil on my feet and knees. It really helps.

REPLY
1 reply
hello2 | @hello2 | Jul 30 9:12am
In reply to @glennathill "I developed small nerve neuropathy at first I thought it was from actual covid but then..." + (show)
@glennathill

I developed small nerve neuropathy at first I thought it was from actual covid but then looking back I thought wait I didn't start pins and needles throughout my body until after I had a vaccine. Doctors have been absolutely no help with any of the problems I've had with covid so sad

Jump to this post

I've suffering from pins and needles, stabbing pain and numbness in my feet for 2 and half years. Then my fingers were crippled. Finally after many tubes of blood - I have SLE - Lupus. Can you imagine being told you lupus at the age of 70. They believe it's from the vaccine and boosters which works on your auto immune system. Lupus can damage your nerves and the tissue surrounding your nerves. It will be you being checked for Lupus.

REPLY
1 reply
glennathill | @glennathill | Jul 30 9:36am
In reply to @hello2 "I've suffering from pins and needles, stabbing pain and numbness in my feet for 2 and..." + (show)
@hello2

I've suffering from pins and needles, stabbing pain and numbness in my feet for 2 and half years. Then my fingers were crippled. Finally after many tubes of blood - I have SLE - Lupus. Can you imagine being told you lupus at the age of 70. They believe it's from the vaccine and boosters which works on your auto immune system. Lupus can damage your nerves and the tissue surrounding your nerves. It will be you being checked for Lupus.

Jump to this post

I'll have to look into lupus thanks

REPLY
glennathill | @glennathill | Jul 30 9:37am
In reply to @hello2 "I use Frankencense oil on my feet and knees. It really helps." + (show)
@hello2

I use Frankencense oil on my feet and knees. It really helps.

Jump to this post

I use cbd salve and it works great but doesn't last long

REPLY
1 reply
glennathill | @glennathill | Jul 30 9:40am
In reply to @omega101 "So sorry you are being dismissed! Are they giving you any medicine, i.e., Gabapentin, Nortriptyline, Acupuncture?..." + (show)
@omega101

So sorry you are being dismissed! Are they giving you any medicine, i.e., Gabapentin, Nortriptyline, Acupuncture?
Do you live near a Metropolitan City?

Jump to this post

I tried Gabapentin but it made me drunk like a sailor LOL so I can't take that. Then they offered me another drug which is an antidepressant but I think it's just putting a Band-Aid on it I want to find the Cause. Plus this antidepressant has a very slow withdrawal to get off of it. That bothered me.

REPLY
1 reply
swilkins1974 | @swilkins1974 | Jul 30 10:47am
In reply to @dhamil "What type of magnesium does he take? I take magnesium citrate but unfortunately it hasn’t helped..." + (show)
@dhamil

What type of magnesium does he take? I take magnesium citrate but unfortunately it hasn’t helped me with my neuropathy. If he found relief with another kind I’d like to try what he’s taking.

Jump to this post

Magnesium Bisglycinate. 200 mg once per day

REPLY
1 reply
dhamil | @dhamil | Jul 30 11:43am
In reply to @swilkins1974 "Magnesium Bisglycinate. 200 mg once per day" + (show)
@swilkins1974

Magnesium Bisglycinate. 200 mg once per day

Jump to this post

Thank you! I’m glad it worked for him. I’m going to try it. 🤞

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.