COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@www3

My nueropathy has bern 3 years. The new medical journal article is called long term covid vaccine syndrome.

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Is yours cardiac autonomic neuropathy? It is different since it affects the autonomic nervous system. It’s not getting better it’s getting worse. We repeated the one month holter monitor test along with the tilt table test. I have seen a cardiologist and electrophysiologist. I was sent to Stanford Hospital to confirm it. I am four years out.

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@mecha

Hola.
Tengo neuropatía desde hace más de 10 años. Empezó de forma suave. Sospecho de varias cosas,entre ellas el Tamoxifeno que empecé a tomar en 2006 después de una operación de cáncer de mamá.Tambien recibí rayos,pero no quimio. A los pocos meses de empezar con mi tratamiento de tamoxifeno empecé con terrible calambre. Y o los suponía causados por el tamoxifeno.Insisti mucho a mí medico oncólogo que me permitiese dejar el Tamoxifeno,pero nunca me permitió hacerlo. Solo me libero , 5 meses antes de lo que debía ser el final. Lo tomé 4 años y medio.No tengo bien en claro cuando comenzó mí neuropatía por qué no fue un comienzo claro,exacto. Recuerdo que empecé a tener la sensación que mis zapatos sandalias ,estaban desabrochados y me los ajustaba permanentemente. También tenía una pesadez al caminar. Y me di cuenta que cuando quería saltar ,por ejemplo.a la soga,no podía. Mí cuerpo no respondía a mí orden mental. Tampoco correr,.Todo eso se fue convirtiendo en absoluto y permanente.Consulte a unos neuróloga,que inmediatamente me ordenó un electromiograma,a lo que me negué,pues me aterra el efecto que produce la electricidad. Me tuve que exponer a un sin fin de análisis de sangre para descartar posibilidades.. El diagnóstico de 3 neurólogos fue el mismo. Aún me encuentro con que insisten con el electromiograma , a lo que me sigo negando,pues creo que no tengo por qué sufrir esa prueba,para corroborar algo que ya está casi corroborado.
He perdido algo más de sensibilidad en la parte superior de una de mis piernas. Una está más afectada que otra. Tengo en los pies bastante espasticidad en los movimientos. Pero ningún dolor,cosa que considero un lujo. Nunca he tenido dolores de ningún tipo. Soy una agradecida a la vida.
Y cómo dijo el poeta. " Muy cerca de mí ocaso,yo te bendigo vida...."

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No dont ever get anotjet covid vaccine.

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Hello
I was 77 years old, 2 years ago, when I received my Pfizer Covid Booster. The first one I was confused as I thought something was wrong with numbness, in feet. Six months later, I received a 2nd booster and all 'hell' broke loose. Within 12 hours I had a high fever, burning back, legs and feet. So hot I put the feet in cold water.
After several specialists reviewed my blood tests, Xrays, MRI, it was determined that I had peripheral neuropathy, most likely from the vaccine, based on my recorded history. All other diseases were ruled out!! It was reported to the government, with no answer. To date, I suffer with burning legs and feet constantly. The pain level varies from 2-8 (0 being no pain to 10 extreme) depending on the each day. I do not have diabetes!!
I have been treated with Gabapentin, Acupuncture and recently Nortriptyline. Nortriptyline has worked the best for me. It is an old anti-depressant which was discovered to help with nerve pain, in smaller doses than for depression.
Indeed, there are vaccine injuries!! It will come to light, I hope! There are global websites with persons reporting neuropathy from the Covid Vaccines.
Wishing you the best,

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@omega101

Hello
I was 77 years old, 2 years ago, when I received my Pfizer Covid Booster. The first one I was confused as I thought something was wrong with numbness, in feet. Six months later, I received a 2nd booster and all 'hell' broke loose. Within 12 hours I had a high fever, burning back, legs and feet. So hot I put the feet in cold water.
After several specialists reviewed my blood tests, Xrays, MRI, it was determined that I had peripheral neuropathy, most likely from the vaccine, based on my recorded history. All other diseases were ruled out!! It was reported to the government, with no answer. To date, I suffer with burning legs and feet constantly. The pain level varies from 2-8 (0 being no pain to 10 extreme) depending on the each day. I do not have diabetes!!
I have been treated with Gabapentin, Acupuncture and recently Nortriptyline. Nortriptyline has worked the best for me. It is an old anti-depressant which was discovered to help with nerve pain, in smaller doses than for depression.
Indeed, there are vaccine injuries!! It will come to light, I hope! There are global websites with persons reporting neuropathy from the Covid Vaccines.
Wishing you the best,

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Have you ever had the EMG/nerve conduction test by a neurologist to be diagnosed with neuropathy or have the skin biopsies for small fiber neuropathy? These test are done by a neuromuscular neurologist to confirm diagnosis.

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@omega101

Hello
I was 77 years old, 2 years ago, when I received my Pfizer Covid Booster. The first one I was confused as I thought something was wrong with numbness, in feet. Six months later, I received a 2nd booster and all 'hell' broke loose. Within 12 hours I had a high fever, burning back, legs and feet. So hot I put the feet in cold water.
After several specialists reviewed my blood tests, Xrays, MRI, it was determined that I had peripheral neuropathy, most likely from the vaccine, based on my recorded history. All other diseases were ruled out!! It was reported to the government, with no answer. To date, I suffer with burning legs and feet constantly. The pain level varies from 2-8 (0 being no pain to 10 extreme) depending on the each day. I do not have diabetes!!
I have been treated with Gabapentin, Acupuncture and recently Nortriptyline. Nortriptyline has worked the best for me. It is an old anti-depressant which was discovered to help with nerve pain, in smaller doses than for depression.
Indeed, there are vaccine injuries!! It will come to light, I hope! There are global websites with persons reporting neuropathy from the Covid Vaccines.
Wishing you the best,

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My husband was the same with minor numbness in his mouth after 1st vaccine. After 2nd vaccine his nose, mouth tongue were numb and tongue on fire when eating. No one would say it was vaccine but it had to be. Problem lasted about 3 years. A naturopath suggested magnesium. Believe it or not, it worked. Maybe a coincidence but it’s gone. He continues to take the magnesium.

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I am sorry you and your husband had to experience this!! Thank God you found a relief from your issue. There are so many people who have had terrible experiences related to Covid. I wish you continued success with relief!

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@swilkins1974

My husband was the same with minor numbness in his mouth after 1st vaccine. After 2nd vaccine his nose, mouth tongue were numb and tongue on fire when eating. No one would say it was vaccine but it had to be. Problem lasted about 3 years. A naturopath suggested magnesium. Believe it or not, it worked. Maybe a coincidence but it’s gone. He continues to take the magnesium.

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I developed the same numbness of my mouth and throat shortly after taking my first vaccine but mine went away after I got home and took antihistamine. Now when I get a vaccine I make sure I take antihistamine afterwards.

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@omega101

Hello
I was 77 years old, 2 years ago, when I received my Pfizer Covid Booster. The first one I was confused as I thought something was wrong with numbness, in feet. Six months later, I received a 2nd booster and all 'hell' broke loose. Within 12 hours I had a high fever, burning back, legs and feet. So hot I put the feet in cold water.
After several specialists reviewed my blood tests, Xrays, MRI, it was determined that I had peripheral neuropathy, most likely from the vaccine, based on my recorded history. All other diseases were ruled out!! It was reported to the government, with no answer. To date, I suffer with burning legs and feet constantly. The pain level varies from 2-8 (0 being no pain to 10 extreme) depending on the each day. I do not have diabetes!!
I have been treated with Gabapentin, Acupuncture and recently Nortriptyline. Nortriptyline has worked the best for me. It is an old anti-depressant which was discovered to help with nerve pain, in smaller doses than for depression.
Indeed, there are vaccine injuries!! It will come to light, I hope! There are global websites with persons reporting neuropathy from the Covid Vaccines.
Wishing you the best,

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I developed small nerve neuropathy at first I thought it was from actual covid but then looking back I thought wait I didn't start pins and needles throughout my body until after I had a vaccine. Doctors have been absolutely no help with any of the problems I've had with covid so sad

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@glennathill

I developed small nerve neuropathy at first I thought it was from actual covid but then looking back I thought wait I didn't start pins and needles throughout my body until after I had a vaccine. Doctors have been absolutely no help with any of the problems I've had with covid so sad

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So sorry!! Yes, most physicians will dismiss vaccine injuries. I was fortunate to have several here, in Philadelphia, who validated me, as they saw others. I do hope, if you still are struggling, to go to a Neurologist.

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@omega101

So sorry!! Yes, most physicians will dismiss vaccine injuries. I was fortunate to have several here, in Philadelphia, who validated me, as they saw others. I do hope, if you still are struggling, to go to a Neurologist.

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Here they don't even acknowledge long covid I use that term they never use it or acknowledge it. They actual played the game my regular doctor sent me to neurologist they test me for neuropathy which was negative then send me back to the regular doctor then he the regular doctor sent me back to the neurologist I did that four times I'm done. They said you probably have small nerve neuropathy but we could test for it but it won't tell us where it's coming from. So here we are.

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