What is the point of seeing a neuropsychologist?
I have commented about this before, but have never asked that question. My 92 year old husband, dx'd in 2019 with mixed dementia, was referred to a neuropsychologist at Yale by the neurologist he saw initially. Ten minutes into the interview, my husband terminated it saying it was insulting to his intelligence and he would not continue. The neuropsychologist tried to get him back in track, but no dice, so we went home. He later called to offer any help we needed and I asked him whether the purpose exam was to help my husband or to advance research. He didn't give me a satisfactory answer about it being a help to my husband, so I wasn't regretful about the termination of the interview. Honestly, the best help we've had is from his geriatrician and especially the APRN in the practice whose mother has Alzheimer's so she knows what she's talking about. And these groups, online and in person. For a condition that can really only be managed, I cannot fathom how a 2 hour interview with someone who has never met the patient, not lived with them 24 hours a day for years, can help. His original neurologist suggested going to the senior center for socialization. My husband's primary care doctor (for 20 years) would have known that he wouldn't have done that BEFORE he developed Alzheimer's, so taking him into a situation like that would only be stressful, it seems to me. Am I being defensive? I don't think so. I do not regret for one minute the way I'm shepherding my husband along this journey, paying attention to where he "is" on any day, hour or minute and adjusting appropriately. I guess it bothers me that caretakers may be being given false hope - that a neuropsych exam will somehow change the trajectory of the disease. Interested in hearing rebuttals to my assessment of the exam. I'm open-minded!
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Welcome, @cbisman. Have you been able to make an appointment with a neuropsychologist?
We joke that the Golden Years are rusty! 😆
I hope you will post and let those of us on a later train (so to speak) what you learn. It is inhumane that we must endure the expense and loss of all dignity to languish for years and years. I’m suspicious that the medical and nursing home industries are being an obstacle to a compassionate end on this country.
This is not a rebuttal. I completely agree with your assessment. I have taken my husband to a number of practitioners since he developed symptoms. Sadly our long time primary care doctor retired before symptoms started. No one has been able or willing to even provide a diagnosis, though his symptoms are now at a Level 5/6 stage. It is support groups like this and caring family and friends who offer the best help.
Over 10 yrs ago my husband was diagnosed for dementia by a neurologist. He was prescribed memantine & Donepizel which he has been on from the onset. Our family Dr has continued prescribing them. It has been the last couple of years that seem more obvious about his dementia. Constantly asking the same question, one moment he’ll ask me if I know his wife and later he’ll know who I am. I see people saying one is in stage 3 or stage 4. What is the criteria for the different levels? We were never told what stage he is in but we can see the slow loss of knowledge. From the beginning of this journey I said I can handle it we were able to socialize and do things together. Now the best is going to the doctors and food shopping. He is tired and sleeps a lot.
My husband was diagnosed with DLB a couple years ago, and the neuropsychologist played a crucial role in his medical diagnosis. DLB is very difficult to diagnose due to the similarity in symptoms with Alzheimer and Parkinson's diseases; therefore, I am so very grateful to our Heavenly Father for having accompanied my husband and be part of this comprehensive evaluation. Thankfully, I was able to report the symptoms I observed and prevented my husband from being misdiagnosed.
I would respectfully advise you to be open to the possibility of including a neuropsychologist as part of the medical team.