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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (807)Comment receiving replies
Replies to "Have not started Cazoys yet. I am somewhat leary taking it do not have many choices...."
Hi there @don69 . You are probably right to have reservations about taking any medication, but especially one that is still relatively new. It will take a few hours, but I strongly suggest that you start with the first posting in this discussion and then read your way through up to the most recent. What you will find is that lots of people have had lots of concerns - all of them valid. Some people seem to have had no net benefit from Camzyos, some have had negative effects, some have had positive effects, and some mixed - just like any other medication. The way I read it though, most of the folks posting here seem to have be benefitting from being on Camzyos. For me it was quite literally life changing at age 59. If you haven't already done so, also check out camzyos.com and watch the videos. Yes, they are from the drug company itself so they are biased, but they make it easy to understand what the drug does for/to you. Good luck wrapping your head around this difficult decision.