Virtual live discussion of Long COVID

As a long covid victim it is gratifying to have some validation. It helped to know that I am not alone and that there may be hope for treatment or even a cure. Thank you for this program.

I watched the entire program live. While I learned nothing new myself (after months of research), was glad they are highlighting the significance of Long Covid. I’ve had too many friends and family say, “what’s Long Covid? Hadn’t heard of it before”. We need much more aggressive reporting and education on Long Covid to get the public to understand the impact. Also, too many people now see a Covid infection as just an irritant, like dealing with a bad cold. They have no idea, that even a minor infection could result in long term repercussions that could upend their lives.

Ditto to all you said, @dawg. It is the necessity of calling attention to it that matters. It IS considered a disability. In my work in the hospitality industry, it's still so tough to get hotels, airlines, airports, and other venues and vendors to understand even the ADA. Now we come along and we 'don't look sick or disabled' they say.

I wish all the non-believers could live in our bodies just a bit -- no no, I don't wish it on anyone - what I wish is that "the media" would pay more attention AND more GPs and other docs were at least setting up a google alert to learn. THAT's been my first question of new docs - from what sources are they learning about long COVID.

I've had an especially difficult week of symptoms and were it not for critical work to do, I'd go take a day-long nap.

To us all and to those caring for us, strength and compassion, knowledge.