Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

dkahlona | @dkahlona | May 1, 2023

Looking for normal again. ☹️

anitaxblack339 | @anitaxblack339 | Jul 25 8:24am

I have Parkinson’s
Does anyone else have it?

Ginger, Volunteer Mentor | @gingerw | Jul 25 11:16am

In reply to @anitaxblack339 "I have Parkinson’s Does anyone else have it?" + (show)

@anitaxblack339 Welcome to Mayo Clinic Connect! Here is a link to the PArkinson's Disease support group. By typing in "parkinsons" [without the quote marks] in the search bar, you will be able to choose "discussions" and get information from fellow members.
https://connect.mayoclinic.org/group/parkinsons-disease/
I hope this helps you.
Ginger

Colleen Young, Connect Director | @colleenyoung | Jul 25 12:17pm

In reply to @anitaxblack339 "I have Parkinson’s Does anyone else have it?" + (show)

Welcome, @anitaxblack339. I moved your post to this discussion in the Parkinson's Disease support group.
- Living with Parkinson's Disease - Meet others & come say hi
https://connect.mayoclinic.org/discussion/living-with-parkinsons-disease-meet-others-come-say-hi/
Here you'll meet others living with Parkinson's or caring for someone with Parkinson's like @hopeful33250 @elimseoj @21amy @jennyjoy @laurievr @enahs and many others.

Anita, have you been diagnosed with PD? Or are you caring for someone who has PD?

Teresa, Volunteer Mentor | @hopeful33250 | Jul 25 2:49pm

In reply to @anitaxblack339 "I have Parkinson’s Does anyone else have it?" + (show)

Hello @anitaxblack339 and welcome to the Parkinson's Support Group on Mayo Connect. I see that you have already been greeted by @gingerw and @colleenyoung. As Colleen mentioned, you will meet many others here who are dealing with PD.

As this is your first post, please share, if you will, how long ago you were diagnosed and what your most troublesome symptoms are. I'm also wondering if you ae taking any medications now.

miked85284 | @miked85284 | Jul 25 5:29pm

In reply to @colleenyoung "Hi @hopeful33250 @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle and @macbeth: I'd like to..." + (show)

Am Parkinsons old timers diagnosed in 2017and nearly done in by Parkinsons. Feel that most people who have Parkinsons feel that falling is not the answer but give up trying to explain why they fall and their families don’t want to admit that they’re parkies.it is a helluva thing. Say nobody dies from Parkinsons but I am trying hard to be the fist

miked85284 | @miked85284 | Jul 25 5:33pm

In reply to @miked85284 "Am Parkinsons old timers diagnosed in 2017and nearly done in by Parkinsons. Feel that most people..." + (show)

Fist should read first.

anitaxblack339 | @anitaxblack339 | Jul 28 7:14pm

In reply to @miked85284 "Am Parkinsons old timers diagnosed in 2017and nearly done in by Parkinsons. Feel that most people..." + (show)

I’m so upset about this

Colleen Young, Connect Director | @colleenyoung | Jul 28 7:34pm

In reply to @miked85284 "Am Parkinsons old timers diagnosed in 2017and nearly done in by Parkinsons. Feel that most people..." + (show)

@miked85284, I agree with @anitaxblack339. Your post is worrisome. It sounds like you don't have support from the people around you and that they prefer to deny or disregard that you have Parkinson's. Do I have that right?

That must make you feel very alone. I'm glad that you posted here among people who understand.