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DiscussionMyxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Oct 7, 2024 | Replies (104)Comment receiving replies
Replies to "I agree with you on not letting our cancer define us. One can be depressed and..."
I live in central NY. About 35 miles east of Syracuse NY where my team of doctors are. I still get regular CT, MRI and X-rays. Now it is every 4 months soon to be every six months. After two years it will be once a year. The doctor said that the only option I have, aside from doing nothing right now, is drilling on both sides of my ankle to remove the screws. I am going to hold off as long as I can. I am not ready to be laid up for months again. My heart goes out to you as it can’t be easy being a caregiver of two and having your own struggles. I have said that God only gives you what you can deal with. He certainly has given you so much. If you don’t mind me asking some questions. How big was your tumor? Did they have to remove your fibula bone and a muscle? What state are you in? Do you get scans only of your legs and chest area? I have asked about brain scans and the doctor didn’t feel it was necessary. My dad passed from a brain tumor and it does concern me that it could spread to the brain as any cancer can. So I wonder why they wouldn’t scan there, too? Sorry about all the questions. If they are too personal I understand. I hope you have good support system and help. You sound like a very strong person, but is good to accept help when offered.