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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7, 2024 | Replies (104)

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@4me

I agree with you on not letting our cancer define us.
One can be depressed and down all the tine our choose to move on.
I was just so grateful there was treatment for my cancer since it is such a rare cancer.
I am also very grateful for my doctors.
I try to support all fundraisers for the research of sarcoma.
Since so little money goes to Sarcoma.

I didnt and dont have time to dwell on my cancer I'm a care giver for my husband who has Parkinsons and can't walk anymore and my 93 yr old father who lives with us.
Thank you for sharing more of your journey with me.
You have been through a lot and you just keep going. You have had some painful setbacks but you never give up.
Sometimes I think think the setbacks make us stronger or we just see how strong we are.

What will you have to do next with the problems you are having with the screws in your foot?
Do you have to do routine scans ct and mri?
What state do you live in?

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Replies to "I agree with you on not letting our cancer define us. One can be depressed and..."

I live in central NY. About 35 miles east of Syracuse NY where my team of doctors are. I still get regular CT, MRI and X-rays. Now it is every 4 months soon to be every six months. After two years it will be once a year. The doctor said that the only option I have, aside from doing nothing right now, is drilling on both sides of my ankle to remove the screws. I am going to hold off as long as I can. I am not ready to be laid up for months again. My heart goes out to you as it can’t be easy being a caregiver of two and having your own struggles. I have said that God only gives you what you can deal with. He certainly has given you so much. If you don’t mind me asking some questions. How big was your tumor? Did they have to remove your fibula bone and a muscle? What state are you in? Do you get scans only of your legs and chest area? I have asked about brain scans and the doctor didn’t feel it was necessary. My dad passed from a brain tumor and it does concern me that it could spread to the brain as any cancer can. So I wonder why they wouldn’t scan there, too? Sorry about all the questions. If they are too personal I understand. I hope you have good support system and help. You sound like a very strong person, but is good to accept help when offered.