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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)

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@siesta1715

I felt like I was reading my own Grover’s journey when reading what you’re going through. I’m at 2-1/2months and have done all you’ve done and each day that I think it’s getting better, I have another outbreak. I’ve been drinking cilantro smoothies for three weeks now as many people on this blog swear they help. So far I can’t tell they’re helping but I’m afraid to stop them just in case. I too am having a terrible time sleeping unless I take Benadryl and even then I’m not getting enough hours. It’s so exhausting!! I’m on topical steroids, Sarna and Caladryl, ice cold aloe gel, cool showers and I’ve upped all my vitamins and bought new bras. I have no idea if any of this is working. I keep reading this blog for any new thing I haven’t tried and I thank everyone who contributes their ideas, as my Drs know less than I do about Grover’s at this point. I wish you well (and a really good nights sleep). I pray we all could get rid of this affliction.

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Replies to "I felt like I was reading my own Grover’s journey when reading what you’re going through...."

If this is your first outbreak and you're only 2 1/2 months into it, you can hope that like many of us the first is the longest and most severe. Mine lasted 1 full year and covered my entire upper and lower torso, front to back from my neck down to pubic hair. Then 6 months on and 6 months off was my cycle for about 4 years . The recurring outbreaks didn't cover my chest and were somewhat less severe. My sides and breast were never affected which does make the tie in to sun damage seen legit. I hope your sides are clear. I trained myself to only sleep on a side and never move, as any friction or pressure added to the misery.
I also used Flanax, a topical capsacian (hot chilies). It would initially burn, but within a few seconds the nerves must have been confused and the itch and pain would subside for about 20 minutes which could give me enough time to fall asleep. Surprisingly the initial burn was not an issue because any escape from the itching was a relief. Do not apply with bare hands in case you rub your eyes after wards. The trouble is if you are broken out over a large area it's simply too much to cover from this small bottle.
Yes like the rest of us you will learn more (not much is known though) about GD then any dermatologist.