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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@daringpanda3009

I was so just diagnosed with Grover’s from a biopsy, I had it all over my back to start with and now I also have it on my stomach, legs, arms and top of neck near scalp. The itching is driving me crazy. I have had a cortisone shot, taken steroids,am putting clobetasol cream on it, have used hydrocortisone lotion and Triamcinolone cream and am on an antibiotic. Nothing helps with the itching except taking 2 benedryl pills which makes me sleep. Not an option when I working. They also gave me pills for itching but they don’t not work. I have had this for about 2 months now with no relief. I have scratched so much my stomach burns. It is hard to get to sleep unless I take Benedryl but then u can’t get up the next day until 1:00. I am at a loss because I know I cannot handle 6 to 12 months or possibly years with this insane itching.

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Replies to "I was so just diagnosed with Grover’s from a biopsy, I had it all over my..."

Have you tried Cilantro smoothies yet? Also, and I know it’s not convenient, but putting ice packs on the areas that itch is very effective. Some people put their bed sheets in the freezer before retiring.

I felt like I was reading my own Grover’s journey when reading what you’re going through. I’m at 2-1/2months and have done all you’ve done and each day that I think it’s getting better, I have another outbreak. I’ve been drinking cilantro smoothies for three weeks now as many people on this blog swear they help. So far I can’t tell they’re helping but I’m afraid to stop them just in case. I too am having a terrible time sleeping unless I take Benadryl and even then I’m not getting enough hours. It’s so exhausting!! I’m on topical steroids, Sarna and Caladryl, ice cold aloe gel, cool showers and I’ve upped all my vitamins and bought new bras. I have no idea if any of this is working. I keep reading this blog for any new thing I haven’t tried and I thank everyone who contributes their ideas, as my Drs know less than I do about Grover’s at this point. I wish you well (and a really good nights sleep). I pray we all could get rid of this affliction.

Find a way to read all the comments that refer to the cilantro/chlorella smoothies you can. They work for a lot of people but sadly, not me. I think I got a little benefit from NB UVB light treatments. I use Eucerin Anti Itch for temporary relief like overnight or waking hours. At night I take Hydroxyzine. I found out two days ago I have shingles and that's a new experience. So far, it's a different kind of itch and not as painful as I expected. I started Valtrex a few hours after getting my red spots so maybe that's helping. I didn't get Grover's until a month or two after retiring so I've never had to sit at a desk itching all day.

I was on the same search as you. (Same drugs) my Dr gave me hydroxyzine but I found Benadryl to work so much better but it put me to sleep too. It was great to help me sleep but I was out of it if I took more than one in a day. Just yesterday I started using Claritin 24hr non drowsy and Melatonin to sleep. I had the best sleep I’ve had since April when I first started my Grover’s journey. I didn’t feel drugged either. I took it the Claritin again today, actually just finished playing 7 holes of golf (in Florida!). Showered immediately and lathered in Darna anti itch and I’m still feeling sooo much better. Yes, I still have lesions, bruises, and itchiness “in the background” so I know my Grover’s is not gone, but right now if I get a few hours of relief I’m thankful. Please people, look at the positive while you’re searching for a relief or even a cure. It’s the only thing to keep you sane. I keep reminding myself that yes, this is a horrible affliction, but I could be in pain or laying in hospice with no hope to live. I have terrible days/hours but I keep telling myself tomorrow will be better. I’ve had many friends w cancer and a great attitude to get them thru it. We need the same attitude.

My husband found improvement from the intense itching and rash within a week of starting Cilantro tincture, which
He ordered online. (He couldn’t stand the thought of cilantro smoothies and knew he wouldn’t stick with it.). Good luck!