Thank you for sharing your situation. Facebook also has a Demodex support group* that has 188 members as of today. It was only 104 back in Jan/Feb of this year (2024) and I'm sure there are hundreds of others out there who are suffering but don't know about the groups. Some of the members are desperate and are using products for animals since veterinarians seem to know more about Demodex than doctors working with human. And those products are readily available.

I called my derm two weeks ago because my husband is concerned that he has demodicosis in addition to his psoriasis and wanted an Ivermectin prescription. He and I have been seeing the same dermatologist for more than 20 years, but when I said we were concerned about Demodex the person I was speaking to said they'd get back to us. They did and said they don't (won't?) deal with Demodex. Amazing! But they deal with Rosacea. It's the ophthalmologists who seem to know the Demodex problem, but the word unfortunately hasn't reached others yet.

In the 1960's my husband went to a dermatologist for his psoriasis and was told his condition was due to stress and implied it was all in his head. They didn't know, but acted as if they did. Which brings me to your mentioning Morgellons. I had never heard of it until a few months ago and looked it up, only to discover that it's considered delusional! In fact, I looked it up again just now and in April Mayo wrote: "Delusional parasitosis is a condition in which people firmly believe that they're infested by parasites, mites, worms or other organisms even though a physical examination by a healthcare professional doesn't support this idea. The condition also is called delusional infestation. One form of delusional parasitosis is Morgellons disease. Symptoms of Morgellons disease include the feeling that fibers are emerging from the skin. People with this condition often report feeling as if something is crawling on or stinging their skin. The intense itching and sores that come with delusional infestation can severely interfere with quality of life."

WHAT?? Whoever wrote this is delusional themselves because they must believe everything to know about skin issues has been discovered, researched and determined, so there's no need for further research. For this person, I recommend changing professions. This reminds me of the story about the head of the Patent Office at the turn of the Century (19th/20th) who thought his office should be shut down because everything has been invented that could be invented. It may be an apocryphal story, but it demonstrates the small thinking that we're still getting from doctors these days. Don't forget it's the same medical profession that advocated bloodletting, leeches and smoking.

FYI, a few of us are thinking about how to approach doctors/dermatologists to get the word about Demodex.

Hang in there.

* FB has several groups but the one for humans is the one to check out. It's not trying to sell you any products.