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Anyone else dealing with Demodex Mites? What helps?
Skin Health | Last Active: Sep 17 9:54pm | Replies (181)Comment receiving replies
Demodox are immune to so many things and hard to get under control. They've lived in our ecosystem for how long and with all the things we eat, take, and put on our skin it's almost impossible it seems to treat. Most Doctors haven't a clue and usually misdiagnose. There is also the misconception that they are microscopic even in a person that has a severe case of demodicosis. You can see them at that point. You can even feel them. You cannot see the true body of course with the naked eye, however they are visible. I believe I posted a pic of one that was huge compared to being microscopic. I had about 5 large ones come out of pores on my lower face. It freaked me out that I didn't take a pic of that, however I took a pic of one that was removed. Drs etc ignore when I show it to them and do not believe it.
It happened to me. I couldn't believe it either when it was happening, however it did. Our healthcare system is way off in a lot of areas with parasites, Demodex, and other conditions they can't explain and refuse to find out. It's like Morgellons almost. I watched that documentary Skin Deep about it and so many similarities in dealing with the condition. The body manufactured the fibers under their skin. The body in the case of Demodex is almost attacking itself so to speak. There is a correlation with the immune system, stress, oily skin, and probably the gut and antibiotics. Drs associate Demodex with Rosacea and diagnose as such. They also call it that with the results of a biopsy a lot of time. It's crazy that there's little to no help for people that have this condition. You can look it up and find that it is indeed a condition with a name when the numbers are way too high, however getting treated for it is a different story.
I've tried so much stuff just like so many. I'm now waiting to try Isotretinoin/Acutane from a Dermatologist I finally found that is at least more open to this condition. He still doesn't quite understand or believe the hell it has caused me etc, but at least he is trying to help me. So many DR's gaslight their patients instead of trying to listen and understand. I also had him take a biopsy of a place near the corner of my mouth. He did not want to and I begged him. The results haven't gotten back yet, but I'm sure it will be the same as one other I had from a different Dermatologist. (Rosacea type Dermatitis) SMH
You can clearly see this stuff on/within my face. I cannot wear makeup at all. It is worse with makeup. It's like trying to cover sandpaper. My case is extreme. I told them I should be a case study. I've had 2 DRs try to refer me to Wake Forest, but no response back from Wake. No one wants to study or research this condition further. My heart goes out to you all. I understand the hell/harm/destruction it causes.
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Thank you for sharing your situation. Facebook also has a Demodex support group* that has 188 members as of today. It was only 104 back in Jan/Feb of this year (2024) and I'm sure there are hundreds of others out there who are suffering but don't know about the groups. Some of the members are desperate and are using products for animals since veterinarians seem to know more about Demodex than doctors working with human. And those products are readily available.
I called my derm two weeks ago because my husband is concerned that he has demodicosis in addition to his psoriasis and wanted an Ivermectin prescription. He and I have been seeing the same dermatologist for more than 20 years, but when I said we were concerned about Demodex the person I was speaking to said they'd get back to us. They did and said they don't (won't?) deal with Demodex. Amazing! But they deal with Rosacea. It's the ophthalmologists who seem to know the Demodex problem, but the word unfortunately hasn't reached others yet.
In the 1960's my husband went to a dermatologist for his psoriasis and was told his condition was due to stress and implied it was all in his head. They didn't know, but acted as if they did. Which brings me to your mentioning Morgellons. I had never heard of it until a few months ago and looked it up, only to discover that it's considered delusional! In fact, I looked it up again just now and in April Mayo wrote: "Delusional parasitosis is a condition in which people firmly believe that they're infested by parasites, mites, worms or other organisms even though a physical examination by a healthcare professional doesn't support this idea. The condition also is called delusional infestation. One form of delusional parasitosis is Morgellons disease. Symptoms of Morgellons disease include the feeling that fibers are emerging from the skin. People with this condition often report feeling as if something is crawling on or stinging their skin. The intense itching and sores that come with delusional infestation can severely interfere with quality of life."
WHAT?? Whoever wrote this is delusional themselves because they must believe everything to know about skin issues has been discovered, researched and determined, so there's no need for further research. For this person, I recommend changing professions. This reminds me of the story about the head of the Patent Office at the turn of the Century (19th/20th) who thought his office should be shut down because everything has been invented that could be invented. It may be an apocryphal story, but it demonstrates the small thinking that we're still getting from doctors these days. Don't forget it's the same medical profession that advocated bloodletting, leeches and smoking.
FYI, a few of us are thinking about how to approach doctors/dermatologists to get the word about Demodex.
Hang in there.
* FB has several groups but the one for humans is the one to check out. It's not trying to sell you any products.