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Lichen Planopilaris...newly diagnosed

Skin Health | Last Active: Aug 1 2:55pm | Replies (92)

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@sophie7

Hi.
I actually do not have itching or burning. I just started losing my hair. Real bummer. What do they give you for treatment? My Derm put me on doxycycline but it is destroying my gut bacteria and I am not sure it is helping. Do you find the peppermint oil to clog your hair pores? Everytime I use an oil it seems more hair falls out. I really wish someone would figure this out. Thanks😊

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Replies to "Hi. I actually do not have itching or burning. I just started losing my hair. Real..."

Both of my dermatologists have told me not to use any essential oils on my scalp and to make sure my shampoo and conditioner don't have them. It's the one thing they both agreed on.

Hi Sophie, so 14 years ago after my biopsy all they knew was that my hair follicles were closing and basically that I was going bald from scarring Alopecia. They did not know why. They gave me steroid shots every 5 weeks and antibiotics. Nothing worked. I’m on a plane so I will tell you the names when I fly back home.
I could not sleep after the shots so I decided to put Peppermint oil on my scalp so hoping the effect would make my scalp hurt less. I fell asleep right away It’s an essential oil and does not make me break out So my biggest mistake, I think now, was that I did not continue using it. It’s anti histamine which is why it stops the itching and burning.
I became my own doctor and did research. I actually did not go to an affiliated doctor that the Mayo Clinic recommended until 6 months ago and asked for another biopsy. It was then that I found out that I had LPP. He prescribed me 2 meds with combinations of meds. I decided to take one at a time to see which one was working. So far nothing is working. So every time I eat something that triggers the burning and itching, I put clobetasol or peppermint oil and massage it a little. So far you can’t tell that I have hair loss