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Grover’s Disease

Skin Health | Last Active: Jul 31 6:35am | Replies (110)

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@gardeningjunkie

For me it took about 3 weeks of drinking cilantro in Feb 2019 to notice mild relief, yet I was only about a month into a new break out and the rash was far from being full blown. After 3 months I knew it helped as no new papules had developed for weeks and the pain and itching was minimized and I haven't had another break out since. I was too afraid to stop the blended cilantro so I drank one daily 9 months even without activity.
For most, including myself, the initial breakout is the most severe and longest lasting, mine lasted one full year. Subsequently my pattern was 6 months of an active painful rash and 6 month dormancy in which it took about 6 months for all the rash papuale scabs to fall off.
Don't give up yet, perhaps it takes longer to notice improvement if this is your initial break out.
From my reading cilantro helps about 40% of us. I understand your misery and hope you get relief. Please keep us posted.?
I have a question about your topical steroid. I had both topical steroids and an injected corticosteroid and got zero relief. Personally I had about 1/2 dozen prescriptions of other topicals and not one ever gave me any relief. Keep in mind a steroid is only a treatment which comes with side effects from long term usage. They do nothing to stop the cause of the condition.

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Replies to "For me it took about 3 weeks of drinking cilantro in Feb 2019 to notice mild..."

Thank you for your comments. Yes, this has been my first outbreak w Grover’s and I’m now in my 13th week. I had a steroid shot in the beginning that didn’t help. And that’s when the Grover’s really raged. Now between topical steroids, using Sarna itch cream, taking Benadryl (occasionally), cilantro smoothies, caladryl and upping my intake of vitamins B12, C and Biotin, I do feel it’s trying to slow down. The rash isn’t as angry looking, and some areas have cleared up but I’m still getting new postules here and there. I’m so thankful to have this blog available to me. It’s a Godsend to know I’m not alone in fighting this crazy itchiness. Seeing your progress gives me hope. 🙏🏻