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@loribmt

Hi @smiles1951 I’m with @gingerw in agreement that you can’t be too involved when advocating for your health. From experience as active patient myself in the hematology department at Mayo for the past 5 years, I can tell you that all of my doctors and their staff welcome my questions, give patient and thoughtful answers to make sure I’m well educated and comfortable with any concerns.
We still continue to work together as a team on my behalf. I’ve been asked to send messages in the portal if there are any changes in my health, such as a cold, infection or new meds introduced from a PCP. I’m sure you’ve noticed as well that being a patient at Mayo spoils us for care anywhere else.

With your relatives making a comment about being too involved with the Mayo staff, I’m suspecting they’ve never been exposed to the refreshingly attentive and compassionate care we’re used to with our Mayo care teams.
So, from my perspective, go ahead and have your list of questions and comments ready to roll for your appt Wednesday. As Ginger said, with your lengthy cold, you very well may find some numbers are skewed from the norm. But you have a possible assignable cause that your doctor will take into account.
I’m feeling the same bit of anxiety. I was given a long leash between blood work this time and I have an appointment coming up Tuesday. However, I’ve been on antibitoics for 17 days so, I’m pretty sure that’s going to put a monkey in the wrench of my winning streak on blood numbers. 😅. Again, I have an assignable cause…but still would rather have encouraging results instead of needing a recheck in a month. Good luck to you and I hope your numbers don’t raise eyebrows.

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Replies to "Hi @smiles1951 I’m with @gingerw in agreement that you can’t be too involved when advocating for..."

Thank you. Your letter is well thought out and very good. When I was almost 20 years old I almost died when having our first baby. Much prayer saved me then, and I learned to enjoy every minute God gives us. Many people do not ever learn this and that is sad. They (to me) waste their time on activities instead of doing what they are passionate about. These Mayo trips all of us have to spend our time on can sometimes frustrate but we have to remind ourselves they are very necessary. Again, thank you for your well written correspondence.

I wish you positive results with your blood counts Lori. God bless everyone going through cancer.