Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

schew5515 | @schew5515 | Jul 2 12:37am

I have concerns. My husband is complaining of a
persistent back ache. Unusual order in urine. I'm not sure how much to push. We have an appointmentv uly 19. I think it's too far away.

What if so something is happening.

schew5515 | @schew5515 | Jul 2 9:30am

We have an a filliw up to learn more on July 19th. We know it is now high grade one section.

schew5515 | @schew5515 | Jul 2 9:31am

In reply to @shester "Hello, all my procedures have been completed locally. I only discovered this forum while searching for..." + (show)

Thank You needed to hear this today

Sue | @swh | Jul 3 10:35am

Where are you able to get BCG locally? I am in east central SD and having trouble finding BCG locally to avoid the long drive to Mayo each week.

Robert Steen | @steenrl | Jul 4 9:03am

In reply to @swh "Where are you able to get BCG locally? I am in east central SD and having..." + (show)

I could not get BCG here in Tucson, AZ. However, the Mayo clinic seems to have a reliable supply up in Pheonix and I was able to get it there. I would check out Mayo in Minnesota.

dldinsd | @dldinsd | Jul 8 4:00pm

In reply to @shester "I completely understand being overwhelmed with the news. No one in my family has ever had..." + (show)

Hope you're doing well and done with your 6th treatment by now. I have a question please. I was notified on Saturday that there is a world shortage of BCG and wonder if you got the full or partial BCG in your latest treatment.
I am scheduled for my first treatment tomorrow and I'm upset that no one has called to tell me if I will get the full treatment. If only partial, would I have to have more than 6 treatments. I am in San Diego, CA. Thanks for any help.

scott232 | @scott232 | Jul 11 4:43pm

Did my 1st BCG treatment yesterday. Not terrible as I thought. Day 2 has been uneventful but feel maybe a little tired. Another step in the journey that I understand. 5 more coming in next weeks

johnfromca | @johnfromca | Jul 12 10:34am

In reply to @scott232 "Did my 1st BCG treatment yesterday. Not terrible as I thought. Day 2 has been uneventful..." + (show)

I begin next week. Did you have a liver test before the treatment?

dldinsd | @dldinsd | Jul 12 2:15pm

In reply to @johnfromca "I begin next week. Did you have a liver test before the treatment?" + (show)

I started first treatment this week but never had a liver test before treatment. Did they tell you why you needed that test? Good luck next week. I'm feeling fine so far.

johnfromca | @johnfromca | Jul 12 2:35pm

In reply to @dldinsd "I started first treatment this week but never had a liver test before treatment. Did they..." + (show)

My mistake. The test was for one wi
th IPF. I have bladder and lung problems and got mixed up,

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