Is it lung Cancer?
I did blood work to check my liver function and cbc and results came back showing signs of lung disease within a week had XRay and CT scan no contrast that shows innumerable nodules and enlarged lymph nodes and a mass so now have to have a pet scan to see what's going on? Dr. Wrote either infection or malignancy on my CT scan results? What does this all mean, my anxiety is through the roof, I want to talk and get answers, so stressed. If it is lung cancer can you work while doing treatment?
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Thank you so much, Lisa. You are right, focus on what I know to be true. I have a PET scan July 9 and am going to talk to my primary doctor about choosing a pulmonologist who can help with a biopsy. I understand that now and appreciate the information. I got overwhelmed with anxiety. Will take it one step-at-a-time and grateful for your responses. Thank you. Burdyblue.
Thank you for emphasizing the need for a pulmonologist with a specialty in lung cancer and for the kudos on advocating for one's self. Navigating the health care system in itself produces angst for me, all the "waiting." Will do my best. Many thanks vic83.
Thank you, Matthew K. You are right, not knowing is angst. But knowing, too, is not easy, but I did survive cancer twice and am grateful for treatments that gave me more years. Your explanation of what the PET is for is very helpful. Interesting our brains use sugar all the time. Good to know to go to a pulmonologist first and will let you know in a few weeks how the test went. Thank you for your advocacy and reassurance. Wishing you continued strength.
Dear jonijean, thank you.
Yes, in inches, not centimeters. (converted them)
I am going to get a pulmonologist/lung doctor with the help of my primary doctor as you and others recommend, so thank you for that. I felt very confused initially and full of anxiety, thus I probably gave too much info in my post looking back. I'm coping better this weekend. Thank you for responding and will let you know what I find in mid July.
I started with shortness of breath and my Primary did not have an appointment and sent me to Urgent Care. UC chest x-ray was abnormal, so I told them to set me up with Pulmonologist, why waste time going back to Primary?
I can self-refer. The first local appt was with Pulmonologist with
expertise in asthma not lung cancer. She ordered CT scan (abnormal) and then PET scan (recommended by CT scan). I read the results and knew I was dealing with possible lung cancer, so I told the Pulmonologist to forward scans to Mayo Clinic because I knew she was not expert in lung cancer. The CT scan described the nodules and ground glass, and the PET scan confirmed the possible cancer and also told doctors that my probable lung cancer had not spread outside the lung. That decided my treatment options...I was good candidate for surgery which I had within weeks. An experienced Specialist is important because they can avoid unnecessary tests...Mayo did not do a needle biopsy on me because they knew immediately what I had. Surgeon told me 80% chance it was cancer. They did robotic biopsy and removal of lung cancer in one procedure.
pullminologist!
Hi again, Lisa.
My PET scan with contrast shows a 2.7 x 1.6 mass that spans 3.3 cm when accounting for a groundglass component which is how important I don't know. No cancer seems to show up elswhere in the body, so this mass looks to be a "developing second primary of pulmonary origin" it was noted in the report , so I think it indicates it's not from my previous breast cancers from a good while ago. I smoked and have mild emphysema, too. I had a breast MRI recently with nothing there. My next step is a pulmonologist who will do a recommended biopsy of the nodule or mass. My primary told me she did the referral, but the pulmonologist got no referral, so I have to bug the primary once again. A call to a multidisciplinary center at UT also says it's booked through November!
My primary says the mass is big. (??) On a former CT w/o contrast, the mass was said to be spiculated which is not good, but on this PET scan, no mention of that, only groundglass is noted. What is groundglass, please? Next step, pursue a pulmonologist and biopsy ASAP I hope. Thank you for the support.
Hi @burdyblue , I agree that you shouldn't wait to see a pulmonologist until November. There may not be much (if any) growth during that time, but for your own mental health, it's best to have answers sooner.
Generally anything over 1 cm is up for discussion to be biopsied. The PET isn't usually the best scan for measurements to the mm level, so try not to get too hung up on that. The PET is looking to see if any other areas glowed on the PET, and the level of that glow (or uptake) to the nodule/s. The 'ground glass' is an area that's a bit hazy, it's not black like your healthy lung tissue, but it's not super defined like the nodule either. It can indicate a questionable area, so the radiologist noted that. It doesn't necessarily mean that it was or wasn't there on the original CT, as some radiologists are more detailed in their reports than others. The pulmonologist should be able to compare the CT and the PET, to tell you if the ground-glass area is new, or just something that wasn't noted in the CT report. It may just be your body reacting to the foreign nodule in your lung in the form of inflammation.
Don't blame yourself for smoking. Anyone with lungs can get lung cancer. But we can't assume that all nodules are cancerous either. At this point, we know that there is something that needs more investigation. The waiting will be the hardest part, so I'm hoping that you can find a pulmonologist that can see you sooner. Until then, work on a list of questions for the appointment to make sure you don't miss anything in the moment. Do you have someone that can go with you too?
Oh, thank you very much for the encouragement. Great idea to work on a list of questions for the appointment. My spouse is able to go with me for support, yes.
What do you mean, please when you say anything over 1 cm is up for discussion to be biopsied? They might not biopsy something?
Thank you.
burdyblue
@burdyblue, the size of the nodule can come into play when a pulmonologist is determining the next steps. Sometimes they want to wait and see if it grows. In that case they may suggest waiting ~3 months and doing another CT scan. Personally, I have had a .8cm nodule biopsied by robotic bronchoscopy, but I was already a lung cancer patient, so they were 90% sure that we were dealing with cancer recurrence. It turned out to be fungal, not cancer.
Your primary nodule is over that questionable point.