Anyone else out there dealing with neuro stuff mostly on their own?

I have serious dizziness and brain fog 24/7 for 5 years now. 4 Neurologists, PT, and extensive testing but no diagnosis. I know exactly when it started after a viral attack but doctors don't listen nor take me serious. I am reconciled to living with chronic dizziness and pain rest of my life

I have serious dizziness and brain fog 24/7 for 5 years now. 4 Neurologists, PT, and extensive testing but no diagnosis. I know exactly when it started after a viral attack but doctors don't listen nor take me serious. I am reconciled to living with chronic dizziness and pain rest of my life

I have had some numbness and a few other symptoms. My second neurologist diagnosed me with Vitamin B12 deficiency and I’m on a very high dose. It appears to be helping. It’s been a long journey and I told the doctor today he saved my life! He’s incredible and I thank God for sending him my way. The sensitivity in my right hand had improved! I’m cautiously optimistic.

Viola, do you know what caused your symptoms? It sounds very distressing. I can relate.

Viola, I cannot relate to your issues but I do want to say how hard all of this must be to deal with, especially with limited support group. I’m going to add you to a prayer list because you are certainly in need of it. Keep everyone updated on how this progresses and bless you-

I’ve had the same since Nov2023. All tests come back fine. Doc says it some kind of silent migraine. I disagree. I think maybe Long Covid. But no help from anybody. Feel very alone.

I started going through the same symptoms. This is going on 5 months and it has been a challenge. I can’t get any answers . I went to three ENT , two primary physician and still looking for answers. Now , I finally got an appointment to a neurologist . The first appointment which was in the Duke System is scheduled in December. We are taking above 7 months away and that is with a NP in our department. Then I went another Health Care System . I had to cross over to three Health Care Systems to get an earlier one. I finally scheduled the first at ECU Health in Greenville NC which is in August . I called the office to verify my appointment and they said it has been canceled. The receptionist told me the NP was going on vacation. I called back again and they finally rescheduled me back in August. I am dizzy , head fogged , and balance problems. Now both legs and feet are hurting. Also, my had to stop working because I can’t function right now. It has been so frustrating and stressful. I have a lot of anxiety. It seems like my life went away in five months.

Please check for SS

I am 7 years post stroke w multiple long term effects, and I've been on my own for 6 years! Multiple symptoms! I would love some help! I know Neuro confuses people, but for goodness sake! A little bit of listening and help could go a long way! Where are rhe experts?!

I relate. I was diagnosed with Neuro-Cognitive Disorder, NCD, last August. I think it was called MCI, mild cognitive impairment, from an earlier version of the DSM. The silence from my doctors is like a wall. They do not even want to discuss going forward. My PCP just shrugged his shoulders and said "Nothing we can do". It's unbelievable.
While I live amid my NCD now, it struck me last week to query the internet about who should be addressing this with me. The answer was a neurologist. I have a neurologist from an earlier stroke that I've seen for neuropathy. I checked their websites and yes, they do treat MCI and related dementia disorders. I've made an appointment for August and I'll see how that goes. I had to get to this point on my own. It's a lack of supporting infrastructure the medical-industrial complex has yet to put in place. Follow the money. If people aren't insured for long term disability, there aren't any dollars to chase to keep us out of those facilities when or if it turns to full dementia or ALS.

Oh I can definitely relate. When I saw my neurologist ( had diagnosed me with Parkinson's on little else mobility wise , except for my tremor that had already been diagnosed as Essential Tremors over 20 + years ago, in March 2023) on the 19th of December/23 all my neurological, cognitive and physical symptoms that had suddenly started back in October of 2023 had finally come to a head on Dec 14 causing me to be forced to take a medical leave of absence from my work and I was eager to talk to him about what I was experiencing. I thought, since most of the symptoms I was experiencing were cognitive and neurological he was the perfect dr to talk to. When I entered his office, sat down and preceded to pull all my papers that listed everything I was currently experiencing and had been since October/23 in varying degrees out of my folder, he looked at me like I had just grown two more heads. I started to describe my symptoms and got as far as describing what my legs were doing (only the second one on the list) and he stopped me there. He stated that I had restless legs and gave me a prescription for Levodopa CR to take at bed and then just sat there looking at me. I thought that since he was sitting and looking at me he was waiting for me to continue so I did. Boy was I wrong. As soon as I tried to tell him another one of my symptoms ( according to the research and information on all the Parkinson's websites and YouTube videos I had read and watched after he had pronounced that I had Parkinson's and had probably had it for at least 20+ years and then left me hanging with no further information. I had been able to connect most of my symptoms I was experiencing directly to the Parkinson's. There was only 1 problem - most of my symptoms usually didn't appear in Parkinson's until much, much later and the progress of them usually didn't happen as fast as mine did. Other than that fact most of them fitted perfectly with the Parkinson's diagnosis he had given me so of course I figured he was the perfect dr to talk to about them) he immediately interrupted me and said "I am here for your tremor only" And every time I started to describe another symptom, he would instantly interrupt me with "I am here for your tremor only". He shut me down and wouldn't listen to a word I tried to say and when I handed him a paper that listed all the symptoms I had been experiencing since t