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Severe nerve pain
I know this has been discussed on here but this year I started experiencing severe nerve pain. Feels like a combination of aches, pins and needles, sharp pain mainly in my toes and feet. I also get involuntary movement when resting, especially in my fingers and legs. Just this week I’ve noticed that when I’m walking my legs feel shaky and weak, like my legs are going to give out.
My arms and fingers have moments of weakness and aches along with the involuntary movements.
My neurologist put me on gabapentin but I had blurry vision, I’m already suffering from sinusitis, head and ear pressure that causes my balance to be unstable, so just could not tolerate the blurry vision on top of all that. Then we tried Lyrica, wasn’t any better as far as side effects, was very lethargic, blurry vision wasn’t as bad, but still there.
Would love to know if anyone else has experience these symptoms, and did you find relief from any treatment for it?
I would greatly appreciate any feedback.
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My primary put me on a low dose of prednisone for a couple weeks and that helped me.He did not want to keep me on it for too long because of side effects,but it helped with pretty much every symptom I have.I think it is because the virus is still lingering in my body after 2 years.All of the Inflammation is still there.
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3 ReactionsThank U for sharing, much appreciated.
Sure!I hope you feel better soon!
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1 ReactionHey There, Low B12 has given me some of these symptoms you describe. I am on a b12 injection weekly for a month & sublingual B12 as it has gotten low again.
Have they checked your B12? I had the peripheral neuropathy symptoms when it got very low....tingling in hands and feet....I felt like electricity was going off in my arms and legs at night.
Praying you get relief soon.
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4 ReactionsHi, you know my PCP did say my b12 is low, and I was taking it. I ran out and didn’t take any all last week, never made the connection.
When I was taking it I did have the symptoms that I described in my initial post. But the pain did seem to get worse over the last few days. Will definitely get a refill and see.
Thank U so much!
Best wishes to U!
Too bad corticosteroids like prednisone and others are not encouraged to be used too long due to side effects since they work for so many inflammatory conditions. May I ask how long your treatment of prednisone has helped you since your dose was limited?
I know.I wish I could have stayed on it longer.My primary put me on a very low dose for a couple weeks and than we tried it again a couple months later.Covid attacked my vagus nerve and all of my muscles.I could not swallow,walk,breathe or even lift a spoon to my mouth.I honestly think he saved my life.No other Doctor would help me.I had lost so much weight from not being able to swallow and was barely 100 pounds at 5'11.I could not even drink an ensure.The Prednisone gave me life and it is truly a miracle drug.He thought to give it to me because we have tons of Lupus in the Family and I already have Hashimito's.He did not even know if covid was involved at the time,but he was just treating what was wrong with me like an Autoimmune because my whole body was under attack and just stopped working.It even helped me go to the bathroom again.I was basically like a human vegetable,but all my Brain MRI's and tests were coming back normal.I think the two rounds of Prednisone got rid of the terrible swallowing issues for the most part and my pain is not constant like it use to be and I am still able to walk.It has been close to 2 years and I could not even get out of bed for a year.I guess alot of Doctors are treating Long Covid like a Brain injury now.It was like I had been in a coma after my body finally came out of constant fight or flight.I think alot of people have been using cymbalta with really good results too with muscle pain and walking issues.I know that is normally used to treat Chronic Fatigue and Fibromyalgia.
I, too have severe nerve pain. I was first prescribed Lyrica but had too many side effects. My doctor then prescribed gabapentin as well as celebrex. This is working for me. I only take the gabapentin at night. I cannot walk long distances but can do housework, swim etc.
I was getting ready to post about B12 deficiency when I saw your post! I was diagnosed last year, but under treated. I don’t process it well. My new neurologist discovered it a couple of months ago and I’m on mega sublingual daily treatment. He says it’s quite common and often goes undetected. It can cause a multitude of issues. Hopefully, I can recover. I’ve seen some big improvements so far, but it could take a year or longer.
Thing is…I’m not sure what caused my issues….post covid syndrome or B12 deficiency…..my doctors aren’t sure. Are they related?
celia16, I think COVID causes a lot of things to be deficient....D3, etc.,
I personally take 5,000 mcg of the B12 methylfolate supplement daily by Solgar and I get injections twice monthly.
I hope this will help you feel better. My peripheral neuropathy symtpoms in my hands, arms, legs & feet have gone away after increasing my B12.
Praying for you. Keep me posted on your progress.
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