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Best medical center for MAC & BE

Posted by ncalvan @ncalvan, Jul 1 9:06am

I live in Knoxville and have been treated for MAC since 2019. Three years on the big 3 and 2 years with added Arikayce. I’d like to go to a major medical center with an NTM and BE clinic that has a solid multidisciplinary team. I’m deciding about Mayo or Cleveland Clinic. Anyone had experiences about either for a full work up? Any physician names would be very helpful. And what about Mayo Jacksonville? Or Rochester. Florida is closer for me if that’s a best choice. Thanks for any guidance and experiences.

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ncalvan | @ncalvan | Jul 9 6:24am

I’m interested in if mayo Jacksonville is as good an option as Rochester since fla is closer to me. Thx

REPLY
gbooth54 | @gbooth54 | Jul 9 6:30am
In reply to @bethfjohnson33 "Does anyone have experience with the Mayo Clinic in Florida? I was diagnosed in December and..." + (show)
@bethfjohnson33

Does anyone have experience with the Mayo Clinic in Florida? I was diagnosed in December and my 6 month scan showed deterioration. Thank you!

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I see Dr Paige Marty in the NTM clinic at Cleveland Clinic. That facility is organized and runs like a smoothly oiled machine!

REPLY
bethfjohnson33 | @bethfjohnson33 | Jul 9 11:07am

Thank you for your reply! Is Dr. Marty only at the Cleveland Clinic in Ohio or also in Florida?

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1 reply
gbooth54 | @gbooth54 | Jul 10 11:10am
In reply to @bethfjohnson33 "Thank you for your reply! Is Dr. Marty only at the Cleveland Clinic in Ohio or..." + (show)
@bethfjohnson33

Thank you for your reply! Is Dr. Marty only at the Cleveland Clinic in Ohio or also in Florida?

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Only cleveland but they have several physicians in the clinic. Not sure about who's in Florida.

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