https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Welcome to Mayo Clinic Connect @mustang68. Do you have a 1968 Mustang?
I posted the link above and encourage you to take a look. There are many HCM/HOCM folks on here, and a whole new group, with lots of experience, have been posting since the approval of Camzyos (Mavacamten).
Just like you, I was misdiagnosed for years with various heart conditions, and at 62 finally found out what I really had. HOCM (hypertrophic obstructive cardiomyopathy). And not only that, the day I learned I had it I was also told I needed open heart surgery! It was an awful lot to take in.
Hopefully, one of the Camzyos users will be able to answer your questions. I do know that every person is unique and no two are alike, so everyone will react differently. The Camzyos group is a wonderful place to spend some time reading, I think you will find some do notice changes right away, and others it takes longer. Then there are those who had a terrible time with it and had to go off. It is not for everyone! It is really important your cardiologist is up to date on this condition and this drug, and you should also learn as much as you can about it. You really need to be your own best advocate. You already know this as you were misdiagnosed for years too. Is your cardiologist familiar with Camzyos and HCM? Do you have an echo scheduled soon?
@karukgirl what was the reason for open heart surgery? I have been wondering if there is a certain septum measurement where they recommend myectomy?