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DiscussionLichen Planopilaris...newly diagnosed
Skin Health | Last Active: Aug 1 2:55pm | Replies (92)Comment receiving replies
Replies to "This disease is horrible. I do not have any itching or burning either. The medicine is..."
What helped the most for me when I changed dermatologists is that she has a plan. She said, "I generally do this treatment for a year, if things look healed and there's not further inflammation, I cut back on the drugs 50% and then at 2 years if things still look good I take you off of the drugs altogether." So don't hesitate to insist on a plan and some way of judging how things are going.
Everyone told me how rare this disease is but both dermatologists in Vermont have multiple patients with it and my co-worker has it along with the exact same bald spots I do. She's been in remission for years without any need for drugs. So it gives me hope.