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Does anyone have Hemocromatosis and??

Blood Cancers & Disorders | Last Active: Jul 15 11:31am | Replies (24)

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@betsy01

Hi to you both. Colleen, I have been diagnosed with Hereditary Hemochromatosis. Maybe Martine has as well? Is her diagnosed related to HH? I am currently seeing a GI doctor, really no visits with him now, but every two month phlebotomies that i am not handling well. What do you recommend for us?

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Replies to "Hi to you both. Colleen, I have been diagnosed with Hereditary Hemochromatosis. Maybe Martine has as..."

Hi @betsy01, here is more information from Mayo Clinic about the treatment of hemochromatosis.

- Hemochromatosis https://www.mayoclinic.org/diseases-conditions/hemochromatosis/diagnosis-treatment/drc-20351448

Phlebotomy (blood removal) is typically a safe and effective to manage hemochromatosis. I'm sorry to hear that your body is not handling the phlebotomies well. Can you share a bit more? Are you in the care of a hematologist too?