Yes! And I have talked to many doctors who have been part of my base of tongue cancer treatments over the last 4 years. None have had any experience with BMS and no one has a cure or effective treatment. I’m on pain medication to help me manage through the day. And that’s all it does it gives me an opportunity to get out of bed. But most days the pain is so bad I want to crawl into bed and never come out. All I drink is water. Foods are bland. It interrupts my food intake and overall quality of life. How can we not have any doctors anywhere in the world that can effectively treat this.

Those of you who say you get used to it must not have it as severe as I do. I can never get used to this.

I’m sorry I don’t have any solutions for you other than to say I empathize.

I think mine started with GERD. Generally if I keep it under control my tongue doesn’t burn as much.

Yes, I feel it in my throat as well and roof of mouth. Sometimes it’s like the roof of my mouth has small cracks . Also, I’ve noticed I can no longer feel when something I put in my mouth is too hot.