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Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Blood Cancers & Disorders | Last Active: Sep 1 6:47pm | Replies (101)
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@suetex

As a MDS person I feel compeled to mention what my Dr. (Oncologist) has tried for me- and it has worked great! Reblosal (sp?) My H&H have never been higher, even when I was young. I am also undergoing IvIg infusions for Sjogren's Nueropathy and it is a subcutenaneous shot given in my abdominal fat. I also have low platelets (not too bad at the moment) and high monocytes. White count is down somewhat but not bad enough to treat. Monocytes are doing extra work there it seems.

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5qdeletion | @5qdeletion | Jul 6 10:37am

Thanks, suetex!

I looked up Reblozyl. It's Luspatercept, the drug Moffit Cancer Tampa, Dr. Rami Komrokji was involved in FDA approval. Apparently it's only for people without previous erythropoiesis treatment, and it may only be for Thalassemia type of MDS. I think it is also for conditions other than MDS. Can anyone corroborate this based upon experience or a doctor's advice?

From internet search:
"Anemia in MDS & Beta Thalassemia (BT) Treatment ...
REBLOZYL https://www.reblozyl.com
REBLOZYL® (luspatercept-aamt) is a prescription medicine used to treat anemia (low red blood cells) without previous erythropoiesis stimulating agent use (ESA- ...
‎Financial assistance · ‎About REBLOZYL for MDS... · ‎Staying with REBLOZYL"

Thanks!

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