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Reclast Infusions: Side-effects & Recovery time
Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (605)Comment receiving replies
@beanieone if your spine is -1.0 why are you doing any meds?
In 2017 when you had your compression fractures, what was your DEXA score for spine?
Just wondering if you have bone quality issues from so many Reclast infusions vs bone density issues. I am surprised compression fractures were treated with Reclast in 2017!
Did Tymlos after Reclast work well? Did Evenity work well after the Tymlos? ( I was the only patient in both my endos' practices to do Evenity after Tymlos, surprisingly, and I had to pester them to allow it.)
Your story may be reassuring in some ways for those of us who are doing Reclast after Tymlos, Forteo or Evenity. Many of us hope to again do an anabolic and have some effectiveness.
But sorry about your compression fractures! I have 7 and know how difficult they are. Hope you are doing well. Maybe you can "lock in" gains with one Reclast infusion and be done-?
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Howdy, @windyshores, Happy Fourth!
Not sure whether Tymlos or Evenity gets credit for my -1.0 score as I did them consecutively. My lumbar t-score in 2017 was -1.8 which I think was likely a scan error; by 2019 it was -2.9. My doc only this year said he feels that the 2017/-1.8 score was a testing error and that my score was probably between -2.5 and -2.9.
My compression fractures weren’t discovered in 2017 - I seem to remember the doc wanting to rule out fractures around 2021 so I had an x-ray which detected three of those buggers. An ER visit (for Tymlos side effects) in 2022 revealed an additional T-12 burst. I was blissfully unaware that compression fractures even existed as part of the OP landscape until that first x-ray. Perhaps if my doc had been “on the ball” he would’ve ordered an x-ray in 2017, I would’ve known about the fracture, and could’ve been more proactive in preventing the next three! All frax were listed as old, healed, of indeterminate age. I don’t know if the Reclast holiday allowed for some or any of the fractures, but the doc said that once frax are discovered, a bone builder would be approved and necessary. He said, even at -2.9, he wouldn’t have prescribed Tymlos/Evenity. I should note that I had Reclast infusions beginning in 2011. By the way, my dual femur score went from -2.5 (2022) to -2.1 (2024) on Tymlos/Evenity. I am happy, but still cautious about managing risks.
I could not tolerate Tymlos (I’ve posted some of my more severe side effects in this forum) and switched to Evenity; that said, I can’t give the blue ribbon to either med. Also, outside of DEXA’s my doc does NO testing except the standard bloodwork to make sure my numbers are in line. It is my hope that I can go back to Reclast. I’m trying to switch docs as I don’t feel this one is serving me well . . . he wants me to begin Prolia. Thanks to you and several other posters here, I will refuse that med unless other extenuating circumstances make it impossible for me to begin Reclast. I don’t know if one infusion will lock in gains - that’s a question for my next doc.
I appreciate your thoughts about my frax - the last three were probably considered silent as the pain was either non-existent or slight. I still have some sciatica, but I’m working with a chiropractor which seems to help. So there’s that ;).
I am sorry to hear that you’ve had seven CF’s. It sounds like you’ve suffered more from them than I ever did as only my first one was truly painful and a “hard” recovery. I have, to date, lost about an inch in height and I’m trying to combat the “hunch” as well.
I appreciate your concern and your posts. I’ll keep you and everyone posted about what my doc has to say about Reclast post-Tymlos/Evenity.
Ta-ta for now! Cheers!