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← Return to Hailey-Hailey Disease
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Both of our daughters usually don’t wear a bra because if they have the HH under their breasts, it’s very painful to wear a bra, especially on the bottom of the breast and on your stomach. Thankfully they have No scaring from the blisters. Eliminating as much sugar from your diet does help. Also staying out of the sun and not sweating also helps. I am 76 and have had it my life, also 5 of my 6 brothers. Only 1 brother and my sister was lucky enough not to get it. HH is generally passed from father to daughter or Mother to son. Good Luck with it.
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If you can find Mitchum unscented antiperspirant gel, you can put it under both breasts and in any creases. It really helps with sweating. I haven't had a flare under my breasts since I started doing this, or under my arms because I use it as deodorant too. I also use bras from 32 Degrees - their "cool bralette" and "Scoop longline comfort bra" are insanely comfortable and washable (hang to dry).
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All these things that everybody is saying is just hearsay, my father had it, my brother has it,I have it my sister has it. My daughter has it. It just goes down to genetic line in the whole family. Nothing seems to help, you think you take something and you don’t have a few years, and boom the next year you get it! I was clear since 2016. I had it for three months and was in bed for a month. It was awful the worst I’ve ever had it nothing helped. It just went away finally .I didn’t do anything different. Didn’t take anything different and boom all of a sudden I get it back bad , now 2024, just a stupid mutant gene that decides to come out whenever it feels like! Then goes away just like that!