1. < Bladder Cancer
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Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

schew5515 | @schew5515 | 6 days ago

I have concerns. My husband is complaining of a
persistent back ache. Unusual order in urine. I'm not sure how much to push. We have an appointmentv uly 19. I think it's too far away.

What if so something is happening.

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schew5515 | @schew5515 | 6 days ago

We have an a filliw up to learn more on July 19th. We know it is now high grade one section.

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schew5515 | @schew5515 | 6 days ago
In reply to @shester "Hello, all my procedures have been completed locally. I only discovered this forum while searching for..." + (show)
@shester

Hello, all my procedures have been completed locally. I only discovered this forum while searching for information about BCG treatments.
I wish you well with your upcoming treatments. I'll tell you what the nurse told me during my initial treatment, she said, "This is not going to be like anything you have been imagining. It will be much easier!" And she was 100% correct.

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Thank You needed to hear this today

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Sue | @swh | 5 days ago

Where are you able to get BCG locally? I am in east central SD and having trouble finding BCG locally to avoid the long drive to Mayo each week.

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1 reply
Robert Steen | @steenrl | 4 days ago
In reply to @swh "Where are you able to get BCG locally? I am in east central SD and having..." + (show)
@swh

Where are you able to get BCG locally? I am in east central SD and having trouble finding BCG locally to avoid the long drive to Mayo each week.

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I could not get BCG here in Tucson, AZ. However, the Mayo clinic seems to have a reliable supply up in Pheonix and I was able to get it there. I would check out Mayo in Minnesota.

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dldinsd | @dldinsd | 1 hour ago
In reply to @shester "I completely understand being overwhelmed with the news. No one in my family has ever had..." + (show)
@shester

I completely understand being overwhelmed with the news. No one in my family has ever had bladder cancer either.
I did not seek a second opinion, first because I just went with what was suggested because I was scared and second because from everything I read my urologist was offering the recommended treatment.
I've had 2 TURBT procedures and today I will have my 5th BCG treatment at my urologists office. I cannot say enough good things about the care I've received and I trust I am in good hands.
Ask questions, like I didn't LOL. Will you have a 2nd TURBT before BCG?

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Hope you're doing well and done with your 6th treatment by now. I have a question please. I was notified on Saturday that there is a world shortage of BCG and wonder if you got the full or partial BCG in your latest treatment.
I am scheduled for my first treatment tomorrow and I'm upset that no one has called to tell me if I will get the full treatment. If only partial, would I have to have more than 6 treatments. I am in San Diego, CA. Thanks for any help.

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