CAR-T - Looking for statistical data for over 70 age group

My husband was diagnosed with multiple myeloma stage 3 09/2020. His oncologist said his was the most aggressive myeloma she has ever seen. He would likely get 2 years vs the 5 year survival rate. CarT did work and gave him the best 4 months we got to take our last vacation with our kids he was only 47. But it did work and worked fast but his cancer was just too strong. He fought hard . I wish u the best but car t cell def worked the only question is how long, but it gave him an amazing healthy 4 months and we were in the hospital 8 out of the 13 months

I don’t know of an online “education” program. I do know there are some basic outlines and videos that explain the process.

One that was helpful to me was: lls.org/patient-education-videos/car-t-cell-therapy

There is another site for a specific CAR T treatment. As I understand it, there are different versions of CAR T. This is the one I will be using for my condition:

breyanzi.com/

Hope this helps.

Best of luck.o

Joe

Hello Joe,
I am brand new to this site. I am reading all the most up to date posts. Did you undergo CAR T? And, how are you now? My husband will be taking part in a CAR T clinical trial soon.
Thank you,
Nancy Simpson

While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d like to welcome to Connect, @ntsimpson. Are there any specific questions that you have? What illness has led your husband to be needing CAR T?

My husband has CLL. He has just rejected a fourth line treatment.

Hello Joe - I was 62 when I had the treatment. Prepping for Cart was not particularly difficult, having all the pre therapy tests was quite typical, the apheresis process (Took about 3 hours) to harvest the cells was very straight forward. I underwent 3 sessions of chemotherapy prior to the modified T Cell infusion. Once the cells were modified, the infusion of the new T – cells was very simple. It was the second day after that that I started to encounter side effects. I had pretty much all the published side effects that we were told about. Neuro toxicity, Cytokine Release Syndrome (CRS), slow heart rate, high fever. I spent 2 weeks in hospital one of them in the ICU. I encourage you to take note of all the side effects that are described by your practitioner. I was extremely weak for some time after I left the hospital. Though I encountered many of the side effects, the treatment did save my life.

I hope you find this information helpful, be cognizant of the fact that side effects and their degree can be different for everyone.

When will the pre treatment process start, Joe?

Thank you.
Would like to talk to you on the phone. My name is Brayton. I am 70. Car T is last chance after chemo burn out.
I am a fighter.

My husband is 86 years old and had CAR T-cell therapy (December 2022) at age 84. He did very well and has been in remission ever since…no sign of Lymphoma anywhere. Go for it!

My husband is 86 years old and had CAR T-cell therapy (December 2022) at age 84. He did very well and has been in remission ever since…no sign of Lymphoma anywhere. Go for it!