Peripheral Neuropathy - Anyone else?

Posted by maallen1943 @maallen1943, Aug 1, 2011

I am 68, have type 2 diabetes, and have developed bad neuropthy in my hands an feet. Doctors give me no help.

Does anyone know anything about this probem?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@77goingon35

I am taking lyrica and cymbalta for my neuropathy. My balance is bad and I am now having to use a walker as I have fallen too many times becauise of it.

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My neuropathy comes from my lumbar Stenosis and arthritis. I was taking gabapentin for the neuropathy, then I learned it can cause low bone mass. Now I have osteoporosis. I am just not sure what to do.

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@rumiana

Where do you feel the pain? What makes it better? Worse? I was in an accident a year ago and have had nerve pain in my right leg eversince. I take lyrica 3/day but am also in the process of trying homeopathy.

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I would love to learn about the homeopathy

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@jillchristline

Hi "Thigh"
I take 900mg of Gabapentin 3x per day. I graduated up to that dose. Starting my second month and it is helping.

I am start physical therapy tomorrow (2x per week). I can let you know how it goes while I"m on Gabapentin.

Not to make things messier for you, I also take Cat's Claw and I use marijuana. Mary Jane helps with the pain as well. Cat's Claw is still under review by me. Hard to tell if it is working when Gabapentin and Mary Jane are taken at the same time. But I bought 6 bottles, so it does not seem to have ill effects. 🙂

Good luck and Cheers!
Jill the Pill

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I have found that the THC gummies help me the most when everything goes crazy at the same time. And that's the sciatica doing muscle spasm tricks in both legs and lower back screaming because it wants me to lay down, but you cant because the legs insist on standing and moving. Can't hardly walk because it feels like I'm stepping on wasps. I'm so glad I found you guys!

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@angie1961

I have found that the THC gummies help me the most when everything goes crazy at the same time. And that's the sciatica doing muscle spasm tricks in both legs and lower back screaming because it wants me to lay down, but you cant because the legs insist on standing and moving. Can't hardly walk because it feels like I'm stepping on wasps. I'm so glad I found you guys!

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My left leg has severe arthritis, so the nerves are terribly painful on the inside of my leg up to my buttocks. And sometimes the neuropathy gets into my jaw and teeth. That sucks.

PT was chintzy. Just stationary bikes and treadmills. But there were a few ladies there to chat with.

So, yes, Mary Jane comes in handy...

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@maryandnans

My neuropathy comes from my lumbar Stenosis and arthritis. I was taking gabapentin for the neuropathy, then I learned it can cause low bone mass. Now I have osteoporosis. I am just not sure what to do.

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Hi Mary,
I also have peripheral neuropathy. Not totally sure what is causing it. I'm 74 now, when I was 21 I was in a car accident as a passenger while grocery shopping for my mother in S.F. We were T-boned when I was in a small Toyota Corolla by a big Ford LTD, hit us on my side (passenger side) flipped us over landed on top of us and shoved the car into the corner house. I wound up with a fractured pelvis in 3 places & sacro-iliac as well, also knee cut to bone by glove box. Of course groceries, orange juice, glass etc. in my hair, head etc. Today these are my problems from the accident per the P.T. from the visit on 6/29/22.

Osteoarthritis
Sprain of sacroiliac region
Rotator cuff (capsule) sprain right
Primary osteoarthritis of both feet
Sacroiliitis (CMS/HCC)
Spondylosis of lumbosacral region
Personal history of healed traumatic fracture
Presence of both artificial knee joints
Varicose veins of unspecified lower extremities with other complications (CODE)
Lymphedema in legs and feet
Knee instability, unspecified laterality
Weakness of both hips
Disorder of sacrum
Lumbar disc disease
Spondylolisthesis at L4-L5 level
Cervical disc disease
Cervical spinal stenosis

So I'm not sure which of the above has cause my neuropathy, plus I have had
5 knee surgeries, 2 of which were knee replacements, 2 c-sections due to the pelvis fracture,
kinda like a roll of the dice. Hope you are doing well. I get a lot of burning feet, have to soak my feet in water every night before bed and my daughter puts Biofreeze Roll-on on bottom of feet. Wear men's tennis shoes per Podiatrist, have lot of toe room Hoka or Topo, can't have top of sock hit top of feet, have to pull way up on foot. that's all, take care, sorry run on sentence. Too much to do today, got to get to it. ugh.

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@papercutter

Hi Mary,
I also have peripheral neuropathy. Not totally sure what is causing it. I'm 74 now, when I was 21 I was in a car accident as a passenger while grocery shopping for my mother in S.F. We were T-boned when I was in a small Toyota Corolla by a big Ford LTD, hit us on my side (passenger side) flipped us over landed on top of us and shoved the car into the corner house. I wound up with a fractured pelvis in 3 places & sacro-iliac as well, also knee cut to bone by glove box. Of course groceries, orange juice, glass etc. in my hair, head etc. Today these are my problems from the accident per the P.T. from the visit on 6/29/22.

Osteoarthritis
Sprain of sacroiliac region
Rotator cuff (capsule) sprain right
Primary osteoarthritis of both feet
Sacroiliitis (CMS/HCC)
Spondylosis of lumbosacral region
Personal history of healed traumatic fracture
Presence of both artificial knee joints
Varicose veins of unspecified lower extremities with other complications (CODE)
Lymphedema in legs and feet
Knee instability, unspecified laterality
Weakness of both hips
Disorder of sacrum
Lumbar disc disease
Spondylolisthesis at L4-L5 level
Cervical disc disease
Cervical spinal stenosis

So I'm not sure which of the above has cause my neuropathy, plus I have had
5 knee surgeries, 2 of which were knee replacements, 2 c-sections due to the pelvis fracture,
kinda like a roll of the dice. Hope you are doing well. I get a lot of burning feet, have to soak my feet in water every night before bed and my daughter puts Biofreeze Roll-on on bottom of feet. Wear men's tennis shoes per Podiatrist, have lot of toe room Hoka or Topo, can't have top of sock hit top of feet, have to pull way up on foot. that's all, take care, sorry run on sentence. Too much to do today, got to get to it. ugh.

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Thanks I am sorry you are have such a hard time.

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I am 83 and have what I think is neuropathy - in my feet. It (the burning tinkling sensation) would pick a spot somewhere (sole, toes, heal etc) on one of my feet lasting for 10 to 35 minutes then stop for a couple of minutes then come back, usually in the same spot. The sensation started over 45 years ago, usually when I was relaxed, sitting in a meeting, and often wake me in the middle of the night, I don't have diabetes or any other cause I can relate it to. About 25 years ago I read an article that suggested cinnamon might help. Got some pills, AND it did. I now take a Ceylon Cinnamon pill every morning and every night and have not had a problem since other than on very rare occasions. When this happens I take two pills and it is gone in minutes. Sound crazy, too simple, no doctors, but it works for me. Might work for others.

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@angie1961

I have found that the THC gummies help me the most when everything goes crazy at the same time. And that's the sciatica doing muscle spasm tricks in both legs and lower back screaming because it wants me to lay down, but you cant because the legs insist on standing and moving. Can't hardly walk because it feels like I'm stepping on wasps. I'm so glad I found you guys!

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Do you still feel alert mentally when you use the gummies? Which ones do you ask for?

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@cotuit

I am 83 and have what I think is neuropathy - in my feet. It (the burning tinkling sensation) would pick a spot somewhere (sole, toes, heal etc) on one of my feet lasting for 10 to 35 minutes then stop for a couple of minutes then come back, usually in the same spot. The sensation started over 45 years ago, usually when I was relaxed, sitting in a meeting, and often wake me in the middle of the night, I don't have diabetes or any other cause I can relate it to. About 25 years ago I read an article that suggested cinnamon might help. Got some pills, AND it did. I now take a Ceylon Cinnamon pill every morning and every night and have not had a problem since other than on very rare occasions. When this happens I take two pills and it is gone in minutes. Sound crazy, too simple, no doctors, but it works for me. Might work for others.

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Does it stop the tingling sensation?

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@bettyg81pain

Do you still feel alert mentally when you use the gummies? Which ones do you ask for?

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I know you are going to think I'm crazy, but the truth of the matter is a friend got me 2 bags, 10 each, and I am currently out, but I believe 250 thc. When they come back by, I will get alk of the info. The first time, used a half. And second time my feet were buzzing and felt like I was stepping on wasps and used a whole one. I was able to sleep that night. Works better than the neurotic for me. But I will repost new info asap! Hang in there guys! And Happy 4th of July!

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