Peripheral Neuropathy - Anyone else?

I went in to get a spinal pain stimulator. Walked in the surgery room did not walk out could not walk at all. The pain in my legs after I woke up from waist down was numb hurt like no other pain I had ever had and could not walk . Went in hospital they could not understand how I had instant nuropathy and the pain I was in . they could not even touch my legs at all . They had to cup there hands under ankles to help me move them. This devastated me . Not being able to walk and the pain . This happened in a 1.5 hours time . They sent me home took 3 people to get me in van from the surgical center. When I got home was crying in pain so bad and could not even stand to walk in house. Luckily my youngest son pretty much picked me up and put me in a wheel chair . We called ambulance to take me to hospital. Them at the Dr office surgical center the doctor I had he had given me 5 differant pain meds to help and they was surprised I was still awake and coherent at hospital. On top of that they could not give me anything because of all the meds they had given. They kept me It took 4 days before I could even stand for 30sec. I was awake for 4 days straight also. They finally said if i was not able to sleep that night they would have to put me asleep to help me. Went to a rehab after that hospital stay 7 days in hospital then rehab hospital 2.5 weeks. I had to basically learn to walk again . Ended up in rehab 2.5 weeks having infections on top of it all . 3 differant types. They called in the top infection doctor here . He had to make the pain Dr take out the stimulator. He did not want to and they had words in hallway out side my room. He told him to clear his schedule it was at 8 am next morning . He said if it dont come out she will die . The infections are killing her. He said he had given me the strongest antibiotics out there to treat infections they was not working much . The nurses and doctors was very worried that i might die from it. They could not understand why this was happening any of it for it was new for them. I agree I really felt bad and could not eat or sleep well I would only get like 2 hours at a time for the pain was awful plus was sick from all meds they was pumping in me.I left there and went into long term Rehab . Was there where I learned to walk with walker and if long way to use wheelchair to go anywhere for I was told to not walk out side my home . So I went from walking to not walking with out the use of help. as in the use of a walker wheelchair for the rest of my life. I'm going on 7 yrs now since then still have nuropathy due to this. Down both legs from waist down really . Had to learn how to know when I had to use restroom to do both . Have had many accidents with that . But it did improve about 10 percent on that part . But that's it . I went from a viable walking life to a seditary home life . I was a CNA for 35 years . I miss not working but can't. I can't stand in one spot for longer than 3 min . And can't walk over 25 to 30 feet in home then have to sit down . Has anyone else had this happen . For what doctors and lawyers have said they never have seen this ?? . Could not get a lawyer to take case said they don't know if I will improve or not . Well I never did. So don't know why but I have to live with this . Pain meds and nurve meds was added to my daily routine . Please if anyone has seen this or has had this happen please let me know . Thanks for reading my story.❤️

I can relate to your pain and frustration.
For 10 yrs now I have been dealing with neuropathy, started with numbness and tingling in my feet, gradually over the yers going up my body.
My lips are also numb,and started at same time.
I now have numbness in my right hand, no feeling in my pelvic area,bladder and Rectal issues.
I have gone to 6 or so neurologists with no help and been diagnosed with CIDP.
I’ve been told I’m a unique person..
I was on same meds, Gabapentin,Lyrica, had IVIG infusions,all doing nothing for my symptoms.
I take tramadol at bedtime because my feet hurt so bad, and during day I take extra strength Tylenol which helps a little with the pain.
My balance is awful, I use a walker and a cane because I’ve fallen a lot.
I wear anAFO brace on my right foot because I broke it 3 times in a year back 5 yrs ago.
Right now I just don’t know what to do next, im just trying to live my life as best as I can.
It’s just so hard not being able to do everyday things when you have mobility issues and no balance.

Sorry you are going,thru this.
So frustrating when the unexplainable happens.
Hang in there, hope you’ll improve soon.

Hello everyone. I have been diagnosed with CISP, Chronic Immune Sensory Polyradiculopathy. Currently, after 5 immuglobulin infusions, I am on a tapered Prednisone (oral steroid) until Nov. 17. I am getting PT for balance. I want to explore all non-traditional treatments that may help to heal (regrow) my nerves. I would appreciate any advice. I am considering infrared light therapy and taking some supplements. Thank you

I too have neuropathy in both feet. No explanation for it, it just came on slowly and so now I live with it. I work with cancer patients for a non profit organization and I teach meditation and visualization. I believe that my practice has helped me in ways that nothing else could possibly do. I started my you tube channel Old Vine Zen initially for my cancer patients, but I believe it can help all of us who are dealing with chronic pain. To be able to deal with the pain and challenges of numb feet has been hard but I know we all can live a more peaceful and happy life if we can come to a place of acceptance. It's not easy, it's not going to be all of the time, but it can ease our suffering. Please join me if you feel inclined. I am so sorry we are all hurting so much.

I would love to find some kind of therapy for numb feet...I do not have pain.
Have not tried anything but Tai Chi and walking and would like to find out about light therapy. Anyone??

Hi @leelees, I'm not sure it will help for numb feet but you may want to take a look at the following discussions to read what others have shared.

– Laser Therapy for Neuropathy: https://connect.mayoclinic.org/discussion/neuropathy-1/
– Has anyone used MLS Laser therapy or Calmare Therapy? https://connect.mayoclinic.org/discussion/question-about-therapies/

That is like a horror story! OMG!!! Has anyone else out there (on Mayo neuropathy website) ever heard of this happening??? My pain dr wants me to try another brand since the Boston Scientific failed to work at all on me.

Water aerobics per my Neurologist plus other exercises. E.g. low impact aerobics

Do you have any idea who or how the mistake was made-which stimulaor (company) was being implanted?
This was not the trial but rather the permanent implanted stimulator that something went terribly wrong???? Since I am in line to have another trial with a different brand of stimulator (first one failed) I would really like to know.