1. < Autoimmune Diseases

Peripheral Neuropathy vs. Erythromelalgia

Posted by jlander @jlander, Mar 20, 2021

I am new to the Connect site so will have lots of questions but will pace myself! I have been reading about PN and EM. I don't understand the difference between them. When I asked the Neurologist who diagnosed me with EM, he said with EM your feet are red all the time. Can anyone else provide me with more differences please? Thank you!

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Christine | @thisoldewe | Jun 28 8:04am
In reply to @gardeningjunkie "Thank you! I will definately research this vinyl sandal. All previous makers I had bought from..." + (show)
@gardeningjunkie

Thank you! I will definately research this vinyl sandal. All previous makers I had bought from have switched to EVA , a blended material, which will cause burning of my feet, especially the foot pad within a day.

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Yes, please check this out. I have thrown out the material, so cannot give the true content.
I like them as slippers, but I do find them hot after a couple of hours.
Wish you success.

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gardeningjunkie | @gardeningjunkie | Jun 28 8:58am
In reply to @thisoldewe "@gardeningjunkie FYI: Birkenstocks have brought out a vinyl sandal that is flat and shaped the same..." + (show)
@thisoldewe

@gardeningjunkie
FYI: Birkenstocks have brought out a vinyl sandal that is flat and shaped the same as the usual Birkenstock.
No, I am not an owner!

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I followed up on the Birkenstock sandal you thought was vinyl. I can understand your confusion believing EVA or ethylene vinyl acetate is vinyl because it looks the same and has the word vinyl in it.
I am allergic to blended materials because an element from rubber, Mercaptobenzothiazole, MBT, which is used to accelorate the blending process. For example it is used in poly-cotton, elastics and such. I react to MBT. This element is never listed as the final material you contact. I can wear 100% cotton, 100% silk, 100%polyester, 100% vinyl for example because this element derived from rubber is not used making this material.
Still hopeful, in the past I have tried EVA footwear and sadly learned that by the end of the day my foot pad will begin to burn.

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1 reply
Christine | @thisoldewe | Jun 28 11:35am
In reply to @gardeningjunkie "I followed up on the Birkenstock sandal you thought was vinyl. I can understand your confusion..." + (show)
@gardeningjunkie

I followed up on the Birkenstock sandal you thought was vinyl. I can understand your confusion believing EVA or ethylene vinyl acetate is vinyl because it looks the same and has the word vinyl in it.
I am allergic to blended materials because an element from rubber, Mercaptobenzothiazole, MBT, which is used to accelorate the blending process. For example it is used in poly-cotton, elastics and such. I react to MBT. This element is never listed as the final material you contact. I can wear 100% cotton, 100% silk, 100%polyester, 100% vinyl for example because this element derived from rubber is not used making this material.
Still hopeful, in the past I have tried EVA footwear and sadly learned that by the end of the day my foot pad will begin to burn.

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Thank you @gardeningjunkie
Sorry about the confusion. (The manager had the same misconception)
Interesting, re the fabric material... I too 'sweat out' with certain clothes... I will give this more attention.
All the best in finding the right stuff!

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catalyst | @catalyst | 5 days ago
In reply to @ell735 "Hello, I would love to know where you got cold socks???Please I must find these... I..." + (show)
@ell735

Hello, I would love to know where you got cold socks???Please I must find these...
I too have Raynaulds and it starts when ever there is a temperature change of just a few degrees .When I walk down the refrigerator aisle of the food store even if it is 68 degrees and my body was in a 74 degree area before that...After that I get Raynaulds my fingers turn white and get numb and cold....I then develop EM several hours later or the next day. First it starts with a bad headache then I know EM is on the way. My fingers and tops of hands get red itchy and very hot.My toes and bottom of feet get beet red and hot and burning. The headache and EM usually last about 3 to 4 days. Doctors at Stanford told me it a thermostat problem with the brain cooling down(Raynaulds) and heating up( EM) hands and feet( and some people face) Wearing sneakers and walking causes the feet to get hot and starts EM flare ups too. I stay away from MSG and salt and spicy foods, all alcohol, but still present with same problems but not as bad.My twin brother also has EM.I also have Ehlers Danlos which also is an auto immune disease... Lots of people who have one autoimmune disease also have several. I also have peripheral neuropathy in my feet and toes caused by the EM and circulation problem. I am 73 years old and thin and otherwise in good health other than these issues.
Please tell me where you got the cold socks. I live in Northern California ( SF bay area)where temperature is mild all year long. Could never live in very cold or very hot weather... ellen

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I prefer the soft socks sold at Dollar Tree only in winter
weave non irritating. No recall of sock fabric or name of manufacturer Also socks may have elastic I have no allergies or reaction
Do have same shoe issues with hard crease on feet
Can only wear sandals with my socks all year .
Have SCS pain relief device that makes almost all day free from sharp burning feet But still have intermittent night breakthrus. Sleep unpredictable since RLS and foot neuro seem to trigger each other. Patch of rotigotine mostly prevents RLS all day But night Neuro pain can trigger it and vice versa.

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raebaby | @raebaby | 4 days ago

I had what I thought was erythromelalgia for 20 years. My feet were so painful. I had it in the winter, not summer. I was finally diagnosed with chilblains instead. I started Nifedipine and never had another attack. My feet were reacting to changes in temperature.
I now have peripheral neuropathy from chemo, but it acts totally differently.

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