The DBS and MR focused ablation have too many issues - they ain’t ready for prime-time yet!
Last night I self-referred to Mayo-Jax. This a.m. I got a call from the scheduler, I was sooooo excited, until she told me that not only are there no appointments available for pts with ET, there is nothing available on the waiting list - i can’t even be added to it!!! Totally bummed.
I asked about 2025 - their schedule isn’t open that far in advance.
She said I can try again. I’ve put it in my phone to write to them on the first of every month. I will skip July for obvious reasons.
If you or anyone knows of a non-Mayo MD, I’m willing to look at them. I like (on paper) the Movement Disorders Clinic at UFL in Gainesville.
I’ve been to the Chief of Movement Disorders at Emory. Got an excellent physical because he had a medical student with him. Gave me an rx for Primidone, with caveat don’t drive or drink wine. Yeah, not happening.
Tried another Movement Disorder doc while still in GA. May need to drive up and see him; though if I get an rx for the Cala TAPS device on Tuesday 7/2, I won’t need a Neuro for a while.
i'll tell you to keep looking for a good Neuro. you don't want to be caught off guard. and then playing catch up. that's a waste of valuable precious time. OK?? d 🏳️🌈
I guess all the stenosis and crap associated w/being a nurse since 1976! I was a hospital-based diploma grad initially. In SINY/NJ, all the hospital SON were Catholic nun ran. I was used to this model!!
Went to Jersey City State for my BSN, part-time over ~10 years.
Went to Emory for grad school. 2 yrs and out!
I swear, the nursing shortage is due to us eating our young!! While going to grad school, I cut back to weekends in NICU in one of the highest delivery hospitals in the US. No support. All women my age or older. All I heard was “I could have been an NP if I wanted to go back to school, why would I”, and other equally unsupportive statements. I was 38’ish at this point. The younger girls were much more supportive.
Anyway, 28 yrs later, I’ve been a CPNP. I’m still working. Now it is strictly in a Locum Tenens status. I try for the shortest assignment - 1 mo is ideal, but never more than 4 mo. I never work Wednesdays, so that break does help.
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Hey AH,
Unfortunately not only can I not make an appointment at Mayo Jax, I can’t get on the waiting list!
I filled out the request form Thursday night. Received a phone call Friday morning. I was so excited when Mayo came up on my phone.
The excitement quickly evaporated as the call went on.
She said all I can do is to keep applying. I have it in my phone to reapply on the first of every month.
Do you know a good movement disorder Neurologist, that isn’t affiliated with Mayo?
Have a great week-end,
Karen
i'll tell you to keep looking for a good Neuro. you don't want to be caught off guard. and then playing catch up. that's a waste of valuable precious time. OK?? d 🏳️🌈
From your lips to God’s ears!! It doesn’t look like I’ll find a Neuro for my ET. Maybe if I had a different dx I would be seen?
Do you know anyone - I don’t care if they belong to Mayo or not at this point!
Thanks,
Karen
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2 ReactionsKaren, i know a good one. mine. but you don't or can travel to Northern Michigan from FL. not affiliated with Mayo. d
LOL, no I can’t! Thanks anyway.
I like the Ortho that did my lami/fusion.
I guess all the stenosis and crap associated w/being a nurse since 1976! I was a hospital-based diploma grad initially. In SINY/NJ, all the hospital SON were Catholic nun ran. I was used to this model!!
Went to Jersey City State for my BSN, part-time over ~10 years.
Went to Emory for grad school. 2 yrs and out!
I swear, the nursing shortage is due to us eating our young!! While going to grad school, I cut back to weekends in NICU in one of the highest delivery hospitals in the US. No support. All women my age or older. All I heard was “I could have been an NP if I wanted to go back to school, why would I”, and other equally unsupportive statements. I was 38’ish at this point. The younger girls were much more supportive.
Anyway, 28 yrs later, I’ve been a CPNP. I’m still working. Now it is strictly in a Locum Tenens status. I try for the shortest assignment - 1 mo is ideal, but never more than 4 mo. I never work Wednesdays, so that break does help.
Take care,
K