Pancreatic Cancer Group: Introduce yourself and connect with others

I have met with them twice. My plan is to be there quarterly. I am usually there when I find myself at a crossroads. I have learned that many physicians’egos or schedules prevent them from acknowledging research and studies beyond our border. While they certainly DO NOT advise “one off” solutions they are very willing to discuss what is coming that is positive and also discuss options personalized to your specific case, co-morbidities, etc. I have found both visits to be quite valuable. Both of them, as well as Dr Doug Evans, will be at the Seema Magowitz Foundation event in Milwaukee August 1. Round tables with patients and doctors, as well as with caregivers, are planned.

Hi, I'm Kelley and just days before Father's Day, my dad was diagnosed with pancreatic cancer. He is diabetic and has chronic back pain and he retired a few years ago. The time spent on appointments, scans, and consults and waiting to start treatment has been tough on my father. We still do not know what stage his cancer is, whether the enlarged lymph nodes have cancer as well, or whether they are recommending surgery or chemo first.

He is in a lot of pain in the evenings and of course at this point, I don't know whether it's cancer, his chronic back pain (that has worsened over the years), or a combination of both things.

I know this is a dangerous cancer, but I'm trying so hard to be cautiously optimistic for my dad and mom through this. Any recommendations or ways to help at the beginning of treatment? I want to be there for them as much as I can; I don't live too far from them.

Any other recommended sites, or groups on here or reading to support someone going through cancer? I want to give them space to process everything but know I am here when they need me.

Thank you so much for your prayers and same to you.

For newly diagnosed patients as well as caregivers, the following two links provide comprehensive information that is clear, concise and helpful-
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NEWLY DIAGNOSED
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https://pancan.org/facing-pancreatic-cancer/diagnosis/recently-diagnosed/
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https://letswinpc.org/newly-diagnosed/

My treat ment complete 8 cemo cycle and 6 cycle tablet,I am tired and weak.my agé 44 years women in india.

Hello @tharani1960 and welcome to Mayo Connect. I'm so glad that you found this forum where others can share their experiences with you. In your post you say that you have completed eight chemo cycles and six cycles of a tablet. Do you know the names of these medications?

I look forward to hearing from you again. How long ago were you diagnosed with pancreatic cancer? Will you be having any follow-up scans in the near future?

This in medicine

@tharani1960, I think you may have tried to upload a file or image. Perhaps you can simply type the name of the medicine in a message.

@tomdecker1117, I might also add Mayo Clinic's Clinical Trial website. https://www.mayo.edu/research/clinical-trials

You can search for clinical trials for pancreatic cancer using the search tool on the site. But I think you might appreciate speaking with a cancer trial coordinator. Here's how:

CANCER-RELATED CLINICAL STUDIES QUESTIONS
Phone: 855-776-0015 (toll-free)
Online form: https://www.mayo.edu/research/forms/cancer-clinical-trials

What chemotherapy are you currently on, Tom? What stage is your pancreatic cancer?

An update on my story. My dear Tom succumbed to the cancer on April 20, 2023. He never recovered from the botched whipple procedure. There was a bad connection (a crimp) and he literally starved to death. I hope your situation is more positive.