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Diagnosed with MGUS and CHIP with M spike

Blood Cancers & Disorders | Last Active: Aug 6 9:48am | Replies (18)

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@pmm

@mattymatilda
Oh no! How frustrating for you. I hope that they can get a new appointment scheduled for you. Be the squeaky wheel. Do let me know, please.

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Replies to "@mattymatilda Oh no! How frustrating for you. I hope that they can get a new appointment..."

Hello again. I had my appointment with the new hematologist. I didn’t realize he worked with the same practice just in a different location. I am very disappointed. He said I should not worry about anything because the M spike at .56 is very low. He was also not concerned about the out of range IGM. He confirmed the chip diagnosis, but said that is also nothing to be concerned about. I have not reached retirement age of 62. He basically said word for Word, what my other hematologist said that all of these test results are due to me being a former smoker and being dehydrated. He told me I only need to be tested once per year on a CBC. I don’t feel comfortable with that. He did not know that I Have SLE and that it has already damaged some of my organs and that I have polycythemia and chronic anemia. He renamed the polycythemia erythrocytosis???? He said I do not have Anemia anymore???? I know this is because when my hematocrit is high, right now now at 49.2, It makes my iron go up because I have too much blood. When I had my two surgeries last year, my hematocrit went down to 36 And my Iron plummeted to 11 but that was due to loss of blood. My hematocrit quickly shot back up to 44 to 49. The bone marrow biopsy I had three years ago showed “ Rare large platelets…”. My old Hematologist said that those Platelets are long dead because they only live for three months so everything’s fine in my bone marrow. Not sure what to do at this point. I guess wait until I have another blood test in one year????? Would love to hear anyone’s advice or thoughts. Thanks.