Pudendal Nerve Entrapment/Neuropathy/Damage

Welcome @raredisease24, I'm sorry to hear you haven't found any relief for your pain following the injury to your lower back. While you wait for others in this discussion to respond, there are many members discussing pain from lower back injuries. Here's a link to the discussions and comments from other members that might be helpful to scan through - https://connect.mayoclinic.org/search/discussions/?search=pain%20from%20lower%20back%20injury.

Have you seen a spine specialist?

I have been suffering with possible pudendal neuralgia - pudendal nerve entrapment along with sciatic nerve entrapment for over 1 year. It started with an injury to my low back in Jan 2023, I have DDD and arthritis in my SI joints. My symptoms have worsened even though I have been to the pain clinic for multiple nerve block injections and on Pregabalin & Baclofen. The pain worsens during the day, sometimes incredibly painful, having already had my prescribed dose of meds. Sometimes I have bladder spasms too. I am wondering if seeing a neurologist and having a CT or U/S guided nerve block is best. Any input is greatly appreciated. With sincere gratitude.

I'm new to this group but not pudendal neuralgia. Pain started in 2009. Was told after an xray it was pseudo gout in my proximal hamstring and was untreatable short of major surgery involving cutting the tendon, scraping the ischial tuberosity and reconnecting the hamstring tendon. Needless to say I didn't go that route. In 2015 they suggested PRP with needling of the tendon. All this did was agitate the situation. In 2017 they suggested TENEX which provided some relief but told me there was an issue with the adductor tendon and they couldn't do TENEX on the adductor tendon. In 2020 a new procedure called Tenjet was proposed and done on both the hamstring and adductor tendons. When that didn't help another ortho suggested trying shockwave therapy. That DEFINITELY was not helpful. In between I've had pelvic floor physical therapy, regular physical therapy, lumbar ablations, right SI ablation, and numerous diagnostic nerve injections. I don't know when this was actually finally diagnosed as pudendal neuralgia, maybe 2016. In 2021 they tacked on chronic pain, myofascial pain, sacroiliitis and recently fibromyalgia. They now are proposing ketamine infusions and if that doesn't help, spinal cord stimulation. There are many options to try. Be persistent and don't give up nor accept no for an answer.

I'm new to this group but not pudendal neuralgia. Pain started in 2009. Was told after an xray it was pseudo gout in my proximal hamstring and was untreatable short of major surgery involving cutting the tendon, scraping the ischial tuberosity and reconnecting the hamstring tendon. Needless to say I didn't go that route. In 2015 they suggested PRP with needling of the tendon. All this did was agitate the situation. In 2017 they suggested TENEX which provided some relief but told me there was an issue with the adductor tendon and they couldn't do TENEX on the adductor tendon. In 2020 a new procedure called Tenjet was proposed and done on both the hamstring and adductor tendons. When that didn't help another ortho suggested trying shockwave therapy. That DEFINITELY was not helpful. In between I've had pelvic floor physical therapy, regular physical therapy, lumbar ablations, right SI ablation, and numerous diagnostic nerve injections. I don't know when this was actually finally diagnosed as pudendal neuralgia, maybe 2016. In 2021 they tacked on chronic pain, myofascial pain, sacroiliitis and recently fibromyalgia. They now are proposing ketamine infusions and if that doesn't help, spinal cord stimulation. There are many options to try. Be persistent and don't give up nor accept no for an answer.

Welcome @mikena, It sounds like you have been through a lot on your journey with pudendal neuralgia. Thank you for sharing your experience but most of all for reinforcing that each of us need to be persistent and aware of options when it comes to health conditions.

Do you mind sharing what brought you to Connect?