Early stage memory loss and MCI lack of medical attention

Posted by rugbymom @rugbymom, Jun 6 6:41am

My husband has memory issues and Mild Cognitive Impairment. My problem is finding help in the medical world for people in his early stage of the disease. Two neurologists couldn't find anything organic and because my husband passes some of their little tests he' deemed ok, "see you in 6 months." They are not living with him, they don't see the decline. Their advice - ear better, exercise, blah blah blah. This said to a man whose brain is slowing down and struggling to keep up. Change in his habits is not happening. The only things sticking around in there now are in the past. What have other people done or advise at this stage? It feels like I have to go it alone on intuition. I have help in terms of family and friends, that's not an issue, they are very understanding and do step in. But the medical world seems not to want to help until he's deteriorated to the point where they can't help anyway.

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@becsbuddy

Good afternoon, everyone, it has been coming to my attention recently, that many of you are concerned about the doctors’ “lack of attention” and not prescribing medications or treatments, or just brushing off the patient with “see you in 6 months.”
https://www.mayoclinic.org/diseases-conditions/mild-cognitive-impairment/diagnosis-treatment/drc-20354583
The truth is There Is No Treatment for MCI. This is clearly stated in Mayo Clinic’s information. The test for MCI, given at 6 month intervals, is very important in helping the doctor diagnose the progression of the disease. As the disease progresses, there are some medications available.
YOU can help by keeping a detailed record of your family members behavior (noting whether it happenings in AM or PM)
What is your main concern with “lack of attention” or “no medications” care?

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Neither neurologist asked me what I was observing or feeling, they just spoke with my husband. Of course he said he's fine and the same as always, he just forgets things every now and again like anyone. Not. And of course he said that, he doesn't know how much he forgets (because his short term memory is leaving) and he isn't aware of his shortcomings, duh. "Come back in 6 months" meant "I'm not going to so anything for 6 more months." Just because my husband did okay on a few drawings he's deemed okay, though he forgot anything they asked him to remember, even for a minute. I would have given them plenty of examples that described the decline had they asked because I have been keeping track. I mentioned MCI to one of them and he told me to stop self diagnosing. The other patients in both offices did have more severe issues so maybe MCI and memory loss just isn't a top priority, who knows. I got more info and help from the people who responded to my original post here than from the docs, sad to say.

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My husband has been diagnosed with MCI as well. He primarily has short term memory issues with some long-term gaps. We are struggling to adapt and figure out how to help him.

We went to a neuropsych evaluation and they provided some additional resources for us. We are modifying his diet (eating cleaner and more quality food) and trying to have him exercise more. I notice a significant improvement in his clarity after goes swimming. It is a blessing to have him be himself for a little bit.

These resources were recommended. (We have not tried all of them yet as we got this evaluation 3 weeks ago):

Online Resources:
a. BrainHQ.com is a research-based program designed to engage the mind in brain
stimulating activities that involve memory, attention, processing speed, general
intelligence, and social skills.
b. For additional tips and resources for maintaining cognitive sharpness, the patient can visit
the AARP mental sharpness website "staying sharp" dot aarp dot com. (Sorry could not post the url).

Books that offer compensatory strategies and tools to support memory in daily activities:
a. The Memory Bible: An innovative strategy for keeping your brain young, by Dr. Gary
Small
b. Seven Steps to Managing Your Memory by Andrew E. Budson, MD and Maureen K.
O’Connor, PsyD

I hope this helps you, and best of luck as we go through this journey.

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@1995victoria

With my cousin I had to learn to accept her the way she is now, not try to "make corrections", didn't work and just frustrated both of us. I would remember the Serenity Prayer when I got sad, frustrated, angry Wish the very best for you in this difficult phase of life.

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Thanks so helpful

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Acceptance is always the key

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@1995victoria

With my cousin I had to learn to accept her the way she is now, not try to "make corrections", didn't work and just frustrated both of us. I would remember the Serenity Prayer when I got sad, frustrated, angry Wish the very best for you in this difficult phase of life.

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Thank you, I often say The Serenity Prayer.

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I face the same problem. Have they done a brain MRI on him. If not, insist on one. This woke my provider up. They still haven't done much more. The coroner for my mother gave vascular dementia as the cause of death--that helped. Out of frustration, my family doctor put me on Aricept which has been a great help, but I have also tested positive since then on an amyloid PET scan (my grandmother's diagnosis was Alzheimer's) so I don't know what is going on. In frustration I have had them refer me to Mayo and am now waiting for a response. Good luck.

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I face the same problem. Have they done a brain MRI on him. If not, insist on one. The positive result woke my provider up. They still haven't done much more. The coroner for my mother gave vascular dementia as the cause of death--that helped. Out of frustration, my family doctor put me on Aricept which has been a great help, but I have also tested positive since then on an amyloid PET scan (my grandmother's diagnosis was Alzheimer's) so I don't know what is going on. In frustration I have had my neurologist refer me to Mayo and am now waiting for a response. I should mention that I am almost 83 and have had adverse reactions to around 55 medications, to date. I have had autoimmune problems since the 3rd grade. Good luck! I look to Mayo for better guidance and diagnosis than I have gotten in Idaho (which is almost nothing).

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