I had a great result with Rituximab infusion. It gave me new life. I had it for ITP . I have lupus also. I took 4 infusion end of 2021. After 11 months platelet was down to 10. October 2022 I took again 4 infusion every week. 18 months has passed my platelet is holding very well. Around 150. I feel so much better. If my platelet goes down again I will repeat it. I am very happy with the outcome. I took so many prednisone. I became like zombie. I feel like I am a normal human being again. At least I know what works for me. I am 67 years old. Selina chowdhury
I feel the same I can't believe three years has gone by and all this started when I got the covid vaccine also. it helped so many but totally destroyed me.
Is anybody sure the vaccine helped, Every one I knew that got covid got over it in two weeks and got it again a year later and it was no big deal.. The ones who died, did they get the vaccine in the hospital after they already have covid???? just a question!
Is anybody sure the vaccine helped, Every one I knew that got covid got over it in two weeks and got it again a year later and it was no big deal.. The ones who died, did they get the vaccine in the hospital after they already have covid???? just a question!
Is anybody sure the vaccine helped, Every one I knew that got covid got over it in two weeks and got it again a year later and it was no big deal.. The ones who died, did they get the vaccine in the hospital after they already have covid???? just a question!
In my humble opinion, every one of the million that died wishes they had had the vaccine. The vaccine wasn’t a cure, it was a preventative of a severe case that may have caused death. The scientists didn’t start from scratch to make it. They had a base that is in a lot of vaccines. Did some people have a poor reaction to it? Yes. Did others who may have died didn’t because of the vaccine, most probably. Take it, don’t take it. But please don’t listen to non scientists and their opinions. Most are politicking and couldn’t care less about you. My 2 cents.
I have had great results with Rituxan with no side effects - I am on it for CLIPPERS disease (I had brain lesions). I’ve also had Ruxience and noticed no difference between the two. I get an infusion every 6 months. If insurance is an issue (like it is for me) shop around and find a private clinic rather than going to the infusion center associated with your doctor or hospital. Also, I have now had a cold, some cuts and minor injuries and even COVID and my immune system worked normally healing and clearing things. I’m very grateful to report that I have not had any problems with my immune system being impaired by the Rituxan. Hallelujah! I was only on Pred for 8 months but it took awhile to feel like I was back to normal. It’s saved my life but gosh it’s a beast of a medication (good and bad). They don’t call it the Devil’s Tictacs for nothing. I’ve been off Pred/on Rituxan since Fall of 2022, next infusion is mid July 2024. I’ll report back on how it goes =)
Hi, how long have you had ITP? Have you ever taken Rituxan? If so, did it help you at all? I had my first infusion today. I’m glad you have found something to work for you, I’m going to look up that drug.
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Thank you so much for replying 😘.
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1 ReactionI feel the same I can't believe three years has gone by and all this started when I got the covid vaccine also. it helped so many but totally destroyed me.
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4 ReactionsMy first infusion is Tuesday. I hope I have good results.
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1 ReactionThe doctor is going to put me back on IVIG also. the rutuxian seems to be not working so well this past week or two!
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2 ReactionsIs anybody sure the vaccine helped, Every one I knew that got covid got over it in two weeks and got it again a year later and it was no big deal.. The ones who died, did they get the vaccine in the hospital after they already have covid???? just a question!
@ginger3344 Please, let’s not start discussing Covid again! We’re all here to help those getting rituxan!
Thank you, Becky
In my humble opinion, every one of the million that died wishes they had had the vaccine. The vaccine wasn’t a cure, it was a preventative of a severe case that may have caused death. The scientists didn’t start from scratch to make it. They had a base that is in a lot of vaccines. Did some people have a poor reaction to it? Yes. Did others who may have died didn’t because of the vaccine, most probably. Take it, don’t take it. But please don’t listen to non scientists and their opinions. Most are politicking and couldn’t care less about you. My 2 cents.
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3 ReactionsI have had great results with Rituxan with no side effects - I am on it for CLIPPERS disease (I had brain lesions). I’ve also had Ruxience and noticed no difference between the two. I get an infusion every 6 months. If insurance is an issue (like it is for me) shop around and find a private clinic rather than going to the infusion center associated with your doctor or hospital. Also, I have now had a cold, some cuts and minor injuries and even COVID and my immune system worked normally healing and clearing things. I’m very grateful to report that I have not had any problems with my immune system being impaired by the Rituxan. Hallelujah! I was only on Pred for 8 months but it took awhile to feel like I was back to normal. It’s saved my life but gosh it’s a beast of a medication (good and bad). They don’t call it the Devil’s Tictacs for nothing. I’ve been off Pred/on Rituxan since Fall of 2022, next infusion is mid July 2024. I’ll report back on how it goes =)
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3 ReactionsI have ITP too. We can chat about it if you want to 🙂
I’m currently taking eltrombopag, and it has been a huge change, for the better.
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3 ReactionsHi, how long have you had ITP? Have you ever taken Rituxan? If so, did it help you at all? I had my first infusion today. I’m glad you have found something to work for you, I’m going to look up that drug.
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