Bariactric surgery complications

Posted by lauries2023 @lauries2023, Sep 13, 2023

My daughter had the surgery three years ago and has been on a decline ever since, she can’t walk or use her hands or even talk anymore. She is severely malnourished, she has a TPN that just makes her more sick and she can’t even eat food anymore since she’s gotten the port. We have been to doctors and the hospital for help and they just say her blood works fine there’s nothing we can do. We need help as soon as possible, I don’t think her regular doctor can help
If some could please help me save my daughter ❤️

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@dlc1953

If it was me, I’d definitely go to a really good/teaching hospital and get a complete check up I understand a lot of people have the surgery and the Drs. Do not instruct them what they need to take and do. I’m on so many supplements that are needed daily/weekly/monthly and cannot be neglective in not doing so, or your body is going to break down. Was she set up with a nutritionist, psychologist and weekly/monthly/yearly follow ups? They are so important to keep. If you don’t get answers try to see the best Bariatric surgeons for evaluation. Good luck.

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I'm going to have "find" a good bariatric surgeon in our area. We just don't have the money or reliable transportation to travel far. And, no, he was never recommended to see nutritionist, counselor, nor any other doctors or specialist. He had one follow up with the surgeon, a general surgeon. He now sees a psychiatrist, pain management doctor, a neurologist and oncologist/hematologist.
For 4 years +, we have researched on our own for answers. My son actually found that he probably had copper deficiency 4 years ago. He had not had a PCP for years, but through financial assistance, was sent to one. He begged the doctor to check his copper level. After 3 months, the doctor reluctantly did. Before the results came back, my son was hospitalized with life-threatening illness. The results came back a day later. His copper was almost completely depleted. To sum up, we are still learning and praying that others may be helped by his ordeal. Thank you for listening (reading).

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@wanda777

I'm going to have "find" a good bariatric surgeon in our area. We just don't have the money or reliable transportation to travel far. And, no, he was never recommended to see nutritionist, counselor, nor any other doctors or specialist. He had one follow up with the surgeon, a general surgeon. He now sees a psychiatrist, pain management doctor, a neurologist and oncologist/hematologist.
For 4 years +, we have researched on our own for answers. My son actually found that he probably had copper deficiency 4 years ago. He had not had a PCP for years, but through financial assistance, was sent to one. He begged the doctor to check his copper level. After 3 months, the doctor reluctantly did. Before the results came back, my son was hospitalized with life-threatening illness. The results came back a day later. His copper was almost completely depleted. To sum up, we are still learning and praying that others may be helped by his ordeal. Thank you for listening (reading).

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I’m sorry about what your son is going through. I don’t know your area is but, I do know, that if you’re going to do something so drastic to your body, find the best, reputable doctor possible. Shame on the Dr. for not informing your son how to proceed after surgery. You have to be your own advocate.

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@dlc1953

Did anyone have Bariatric surgery and after, 15 years be told, to stop taking B-12 because your levels were too high? We all suffer from Malabsorption syndrome, so I cannot figure out how the B-12 level will get too high. My friend is going through this now, and it just seems weird to me. I had it done 15 years ago, and I know if I don’t keep up with my B-12 it goes right into negative bloodwork. I’m wondering if there isn’t something else going on with him medically. Thanks.

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@dlc1953
I had my surgery over 13 years ago and I am under impression I will continue to take B12 for life. Your friend might have other reason her B12 has increased, but if to high, her provider is correct to try and reduce.

At one of my yearly checkup my calcium was high, the provider order a recheck in 3 months and it was back in normal range.

Beside the B12 injections, is she taking other supplements that include B12?
Did her provider order a recheck in few months to see if in normal range after stopping B12 injection?

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@dlc1953

I’m sorry about what your son is going through. I don’t know your area is but, I do know, that if you’re going to do something so drastic to your body, find the best, reputable doctor possible. Shame on the Dr. for not informing your son how to proceed after surgery. You have to be your own advocate.

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Amen to advocacy! His surgery was emergent, due to duodenal bleeding ulcers. As an elective surgery, I would never want to have to consider this procedure. It is a lifetime obligation to care for one's self. I just wish he had been given proper instructions afterwards. However, we know now, and trust God to see him through.

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@roch

@dlc1953
I had my surgery over 13 years ago and I am under impression I will continue to take B12 for life. Your friend might have other reason her B12 has increased, but if to high, her provider is correct to try and reduce.

At one of my yearly checkup my calcium was high, the provider order a recheck in 3 months and it was back in normal range.

Beside the B12 injections, is she taking other supplements that include B12?
Did her provider order a recheck in few months to see if in normal range after stopping B12 injection?

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Apparently there can be false readings connected with B-12. He was injecting himself weekly, whereas I do it once a month. I was told also, that it is a lifelong commitment.

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I was malnourished. Down to 96 pounds, 5'1". I was diagnosed with EPI, and am now on Pancreatic Enzymes and it is a game changer. I was only diagnosed with EPI because the enzymes helped. Not from any test results. I take Zenpep, but there are some others. I would check them out.

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@lauries2023

How long before you found him after your surgery, it’s been 4 years since my daughter surgery and she only weights 95 pounds. I don’t feel like she could go through a surgery like that right now. Right from the beginning after the surgery I knew something wasn’t right because they were sending her to the emergency room for ice bags for hydration and then she had to have her gallbladder out 8 months later because she lost the weight so rapidly. It doesn’t matter what we tried she wasn’t absorbing any nutrients for her body. She has no muscle or fat remaining and we still can’t get anyone to help her.

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You might ask about Pancreatic Enzymes. I was malnourished and taking Zenpep has changed things for me significantly. EPI. Your Gastroenterologist would be the one to ask.

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In reply to @lenjul "Wisconsin" + (show)
@lenjul

Welcome Wisconsinite, @lenjul. How are you doing? Might I ask where you are on the bariatric surgery journey? Are you preparing for surgery or have you had it?

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