Reclast Infusions: Side-effects & Recovery time
I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?
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@mayblin I asked about a DEXA a few weeks ago and MD responded next year. I could ask him with the caveat that I will pay if insurance doesn't. There is good reason medically to do one but my doc would have to write a letter.
The thing is, I think part of me doesn't want to know:) I had COVID and was in the hospital in November and for maybe three weeks did not do Tymlos. Then a few weeks of partial (tapering) and then Evenity Jan.6. My P1NP was not well-timed but showed no increase on Evenity.
My doc does not do bone markers and I occasionally have my PCP do them. But I think I have come to have a sort of macro/holistic view given all the factors to look at and my main goal is not to fracture. No fractures since 4/21. I get x-rays every once in awhile.
I am pretty sure my DEXA had a different "area of interest" and there are so many variables that I am not even sure a DEXA would help. I have kept a chart since 2001 and the DEXA's jump around a bit. People post about changes like -.1 or -.2 which just aren't meaningful at all.
With any testing, I ask, "will I change what I am doing?" The answer is no. So I tend to not do the tests! Slow medicine!
That's great! Good to know water helps.
Susan ,
Will be wishing you well prayers on Thursday for minimal side effects. I’ll be next in a few months .
Good luck tomorrow @susanfalcon52. Let us know how you do!
I get your reasoning totally. It's interesting we only have about 10 osteo meds to choose from. However, if putting 2-3 problematic ones aside plus intolerability issues plus medical issues or many unlisted issues relating to a specific person, we are left with very limited choices. In some situations only one way going forward. My first thought was that it will be intersting to know 4mo evenity's effect on your bmd changes. But your clarification of altered tymlos dosing while having COVID (sorry you had so much to go thru!) might muddle with the dexa anyway rendering unuseful information anyway. You said it well not to frature is the ultimate goal!
All the best!
Good morning Well Wishers,
So, I had the Reclast infusion yesterday morning. The nurse was great and knew that I wanted a slow infusion so that is what I got. I was very hydrated and Tylenoled up. Saline infusion after.
When finished, I took myself to lunch at my favorite Mexican restaurant.
Took Tylenol and drank water rest of day. At bedtime I took Motrin also.
I’ve been up 30 minutes and feel pretty good. No fever, I do feel achy, though.
I am going to attempt to have a ‘normal’ day.
So far, I feel pretty lucky.
I’m due to have Reclast next week. I did not have any reaction last time. I would definitely contact the company the supplied the medicine. If your doctor is a rheumatologist he should know how to help you.
Hello, I’m not sure I have it right.. Are you on both Reclast and Forteo at the same time? Your tips about the 45 min infusion & the other two are really interesting…why does a longer infusion time help? I wonder if the doc could first approve this ..rather than confront the tech guy on the day b off…interested in asking for this if I can understand why this helps…Thanks for helping !
susanfalcon52, could you list what you did, and asked the nurse to do, to prepare for your Reclast infusion? Right now Reclast will be my follow up med after Forteo. Thanks.
sanfo,
Apparently, the longer infusion time is easier on kidneys. I had told the infusion nurse ahead of time that I wanted a longer infusion time. She cheerfully complied.