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How long can we be on azacitidine (Vidaza)?

Posted by dchavian @dchavian, Feb 26, 2019

,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the past month my Hemo goes down , ( I only got problems with my Hemoglobin levels no other problems , and barely symptoms ) to the point I needed a Blood Transfusion last month, Vidaza 5 days every 5 weeks , and Haranex injection every week , I saw the Transplant specialist and seems like I want a good candidate, I,m in Miami, Silvester Comprehensive Cancer Center , great doctor , fantastic nurses ,but still wonder how long with hat be, Doctor say for a lifetime , but how long is that period ? Wish you all the best of luck

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miketllc3 | @miketllc3 | Jun 19 9:00am
In reply to @njjwjj "I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in..." + (show)
@njjwjj

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in bone marrow blood levels 0. 3 months now blood levels are awesome. Kidneys levels low. I feel the only problems I have seems to be from the chemo and premeds. My dr makes it sound like be on this for life. What say you?

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I am on 28 cycles. My doctor also says for life.
All the best to you.

REPLY
miketllc3 | @miketllc3 | Jun 19 9:04am
In reply to @dchavian "Thank you Justin , yes I have asked my Doctor and he says I,m doing fine..." + (show)
@dchavian

Thank you Justin , yes I have asked my Doctor and he says I,m doing fine and there is not other choice ,but stay in the treatment, my questions was oriented to see about other patients with the same situation , it will get worse now I,m on Vidaza for 2 years? how far from other complications am I , according to there patients situation? anyway I will check in all the other discussions you mentioned ,
thanks again , is so good to be on this site .

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I am on 28 cycles. I like you am doing well so far. My labs are in the normal ranges. Continued good luck to you.

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miketllc3 | @miketllc3 | Jun 20 9:05am
In reply to @camacho "my wife has been diagnosed with mds and has two rounds of Vidazia. What is the..." + (show)
@camacho

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the average wait time for Vidazia to show any effects on her hemoglobin?

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I am on 28 Cycles now. It took about 5 or 6 cycles for my hemoglobin to move up the normal ranges. It has now been staying around 13.5. I responded well to the Vidaza. All the best to you. Good health.

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