1. < Prostate Cancer

Treatments for long term incontinence after RP

Posted by jsh327 @jsh327, Jun 10 9:54am

I am posting this on behalf of @phl6953, Replies should be sent to @phl6953. A simplified Chinese translation (Google Translate) is pasted below the English language version

@phl6953 I underwent radical surgery for prostate cancer on January 7, 2023. Unfortunately, my prostate cancer reached the nerves outside of the prostate, so they were not saved during surgery. I have been suffering from urinary incontinence ever since. What is your experience with treatments that successfully stopped or greatly reduced incontinence?

As background, I will be 71 next month. My health has always been good, I swim in public water almost every day, 365 days a year. I have been doing Kegel exercises of three sets a day - morning, afternoon, and evening - of 20 minutes each with 10 second muscle hold and then 10 second muscle relax. In August 2023, I started receiving a treatment of magnetic vibration to the perineum. By February 2024, I woke up with very little leakage and only woke up 1-2 times per night. Unfortunately, in March after having alcohol, I started to have more leakage.

Please help with advice based upon your experience.

@phl6953 我于 2023 年 1 月 7 日接受了前列腺癌根治手术。不幸的是，我的前列腺癌扩散到了前列腺外的神经，因此在手术中未能挽救。从那时起，我就一直受到尿失禁的困扰。请问您在成功阻止或大大减少尿失禁的治疗方面有什么经验？

作为背景，我下个月就 71 岁了。我的健康状况一直很好，一年 365 天几乎每天都在公共水域游泳。我一直在做凯格尔运动，每天早、中、晚各做三组，每组 20 分钟，肌肉保持 10 秒钟，然后肌肉放松 10 秒钟。2023 年 8 月，我开始接受会阴部磁振治疗。到 2024 年 2 月，我醒来时已经很少漏尿了，每晚只醒 1-2 次。不幸的是，三月份喝酒后，我的漏尿现象开始增多。

请根据您的经验提供建议。

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

phl6953 | @phl6953 | Jun 14 9:50am

盼望@jsh327、 @jerryegge俩位能够与我交流！

REPLY
phl6953 | @phl6953 | Jun 16 11:04pm
In reply to @phl6953 "今天我患前列腺癌和手术后一个关键点节点。去年元月7日手术，至5月PSA指标0.057，6月决定内分泌治疗，于14日注射第一针。9月14日注射第2针、12月14日注射第3针。PSA指标呈下降趋势，至今年3月14日PSA指标又为0.01。6月14日是我最后一针的半年日，今天检查的PSA指标0.000（ng/ml）,参考值（0--4）；睾酮T0.2（ng/ml）。参考值（男性1.42-9）。太太知道后很是高兴，现在我就剩下尿失禁！ 上帝呀，承救我吧，几时才能够成为一个100%的大陆人！" + (show)
@phl6953

今天我患前列腺癌和手术后一个关键点节点。去年元月7日手术，至5月PSA指标0.057，6月决定内分泌治疗，于14日注射第一针。9月14日注射第2针、12月14日注射第3针。PSA指标呈下降趋势，至今年3月14日PSA指标又为0.01。6月14日是我最后一针的半年日，今天检查的PSA指标0.000（ng/ml）,参考值（0--4）；睾酮T0.2（ng/ml）。参考值（男性1.42-9）。太太知道后很是高兴，现在我就剩下尿失禁！
上帝呀，承救我吧，几时才能够成为一个100%的大陆人！

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PHL6953
@phl6953 | 2 days ago
Today I have prostate cancer and surgery after a critical point node. I had surgery on January 7 last year, PSA index 0.057 in May, endocrine therapy was decided in June, and the first injection was given on the 14th. The second injection was given on Sept 14 and the third on Dec 14. The PSA index showed a downward trend, and by March 14 this year, the PSA index was 0.01 again. June 14 was the half-year day of my last injection, and the PSA index examined today was 0.000
(ng/ml), reference value (o-4); Testosterone To.2 (ng/ml). Reference value (1.42-9 for men). The wife is very happy to know that now I am left with incontinence!
God, help me, when can I become a 100% mainlander!
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bmcleod | @bmcleod | Jun 18 10:42am

I am 75 with PCa. Successful prostatectomy 21 years ago, but 2 bladder resections last 8 years resulted in incontinence. Tried an external catheter with bag for a year. Highly unsuccessful. Then tried a Cunningham clamp that has worked great. Got all my mobility back including swimming and hot tub. Suggest you might try this solution.
Ben

REPLY
1 reply
phl6953 | @phl6953 | Jun 19 10:42pm
In reply to @bmcleod "I am 75 with PCa. Successful prostatectomy 21 years ago, but 2 bladder resections last 8..." + (show)
@bmcleod

I am 75 with PCa. Successful prostatectomy 21 years ago, but 2 bladder resections last 8 years resulted in incontinence. Tried an external catheter with bag for a year. Highly unsuccessful. Then tried a Cunningham clamp that has worked great. Got all my mobility back including swimming and hot tub. Suggest you might try this solution.
Ben

Jump to this post

Dear Mr. Claude, how do you do！
I am very glad to see your message. I feel that it is not easy for you to endure the pain of such a long illness, but you live a strong life, which is worth learning: What is Cunningham?
I am also using a kind of clamp now, the origin is also in the United States:
Z H B
"The VibReflex Incontinence Clamp is an external medical device used to control urine leakage by compressing the urethra and preventing the flow of urine"
HOW TO USE
Step 1
Open the incontinence clamp by releasing the catch and lifting up the top part
Step 2
Place your penis between the silicone rubber pads with the incontinence clamp about halfway down the
Step 3
Latch the incontinence clamp to compress the urethra at the levei that's shaft of your penis comfortable to you
because I am not in the United States, I am not very clear about what you said, can you help me know, understand and get familiar with it?
Thank you for your kindness and help! help

REPLY
1 reply
bmcleod | @bmcleod | Jun 20 12:22pm
In reply to @phl6953 "Dear Mr. Claude, how do you do！ I am very glad to see your message. I..." + (show)
@phl6953

Dear Mr. Claude, how do you do！
I am very glad to see your message. I feel that it is not easy for you to endure the pain of such a long illness, but you live a strong life, which is worth learning: What is Cunningham?
I am also using a kind of clamp now, the origin is also in the United States:
Z H B
"The VibReflex Incontinence Clamp is an external medical device used to control urine leakage by compressing the urethra and preventing the flow of urine"
HOW TO USE
Step 1
Open the incontinence clamp by releasing the catch and lifting up the top part
Step 2
Place your penis between the silicone rubber pads with the incontinence clamp about halfway down the
Step 3
Latch the incontinence clamp to compress the urethra at the levei that's shaft of your penis comfortable to you
because I am not in the United States, I am not very clear about what you said, can you help me know, understand and get familiar with it?
Thank you for your kindness and help! help

Jump to this post

Hello,
Sounds like you are already using my suggestion! Mine is a Bard Cunningham Clamp from multiple US sources. Here is one:
https://www.healthproductsforyou.com/p-bard-cunningham-penile-clamp.html

REPLY
1 reply
phl6953 | @phl6953 | Jun 20 10:29pm
In reply to @bmcleod "Hello, Sounds like you are already using my suggestion! Mine is a Bard Cunningham Clamp from..." + (show)
@bmcleod

Hello,
Sounds like you are already using my suggestion! Mine is a Bard Cunningham Clamp from multiple US sources. Here is one:
https://www.healthproductsforyou.com/p-bard-cunningham-penile-clamp.html

Jump to this post

Hello, thank you for your reply.
This website is not available to us abroad.
You can make the instructions false. Let me have a look.
Thank you very much.

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