Reclast Infusions: Side-effects & Recovery time

After about 5-6 days after my Reclast, with the help of rest and Tylenol or Advil, I was fine and had no more side effects of which I was aware. They do say that each time the side effects are less. It was also recommended to slow the infusion to 30 minutes instead of 15 (since it was my first time, and to take 1000 mgs of Tylenol. They gave me Benadryl beforehand to forestall any possible allergic reaction. Best of luck and hope your side effects have abated. .

I recently had a Reclast infusion and had the expected reactionfor about 4 days. Feeling better, I did a 30 minute walk and a light workout. The next day I had extreme all over my body, tightness in my head, and my feet were very swollen and sore. At this point, I don’t want to due another infusion due my reaction and some of the bizarre reactions I am seeing on this thread. Sure there is a better treatment.

@bently2013 that sounds awful! Hope you feel better.

I had my first Reclast infusion today as a follow up to 2 years of Tymlos and 4 months Evenity. I had a 20% dose (1 mg). I had IV hydration w/saline for one hour (300mlg, originally 500ml ordered) then slow infusion of Reclast for one hour. I drank water all morning, not to excess though. Ate salty potato chips (nephrologist wanted salt) and too two doses of 325mg tylenol 3 hours apart before and after the infusion.

I'll post what happens. Fluish reaction, if it happens, supposedly starts 6 hours after the infusion and lasts 3-4 days. Fun! My main concerns are kidneys, afib, lupus.

windydhores!
I knew your Reclast infusion was soon, but I didn’t know it was yesterday. How are you today? I hope you feel 100% and are planning a fun weekend!
My Reclast infusion is Thursday. 🤞🏻

@susanfalcon52 second day out (infusion was Wed.), woke with fever 99.5 (my usual is 97.5) and achey but headache better and tinnitus, I think, is going down a bit. I am not concerned as this kind of reaction is common (though with 20% dose and IV hydration I thought I might escape).

I have read that second infusion isn't as bad. I have read the above posts about long lasting effects and am sorry to hear about them. I won't worry until I have to!

My kind doctor checked in on me yesterday. Funny, that made me feel safer.

@jeanniejacobs I assume that Reclast is the cause of your issues. Was it your first osteoporosis medication? I cannot do any weight lifting but walk a lot. I hope you improve. I did well with Tymlos despite my sensitivities and health issues, and we'll see how I do with low dose Reclast. Those of us who need to "lock in" gains and prevent rebound bone loss have no choice really. We are between a rock and a hard place.

For low dose more frequently I will have to see if Medicare will authorize another infusion. The nurse told me this can be a problem. They see people doing 2mg or 3mg but it is unusual to do 1mg. Full dose is 5mg. My doctor will have to explain my sensitivities, kidney issues and afib.

I’m so sorry you are having these symptoms. I wish I had better news to share with you. I had the Reclast infusion 10 months ago and am still experiencing the exact symptoms you described after activities. I have been on medical leave from work since March. It turned my life upside down. I am continuing to walk 2 miles 2 times per week, with yoga in between and weight resistance once per week.
I have to plan to be in pain afterwards and cut back when it becomes overwhelming. I’m also still experiencing brain fog. I do have good days now but it’s unpredictable. I will not do another infusion or take any of the horrible drugs. I wish you a better long term experience and please keep me updated. Perhaps we can help each other 😊

@susanfalcon52 second day out (infusion was Wed.), woke with fever 99.5 (my usual is 97.5) and achey but headache better and tinnitus, I think, is going down a bit. I am not concerned as this kind of reaction is common (though with 20% dose and IV hydration I thought I might escape).

I have read that second infusion isn't as bad. I have read the above posts about long lasting effects and am sorry to hear about them. I won't worry until I have to!

My kind doctor checked in on me yesterday. Funny, that made me feel safer.

@jeanniejacobs I assume that Reclast is the cause of your issues. Was it your first osteoporosis medication? I cannot do any weight lifting but walk a lot. I hope you improve. I did well with Tymlos despite my sensitivities and health issues, and we'll see how I do with low dose Reclast. Those of us who need to "lock in" gains and prevent rebound bone loss have no choice really. We are between a rock and a hard place.

For low dose more frequently I will have to see if Medicare will authorize another infusion. The nurse told me this can be a problem. They see people doing 2mg or 3mg but it is unusual to do 1mg. Full dose is 5mg. My doctor will have to explain my sensitivities, kidney issues and afib.

windyshores,
Thank you for the report! I hope you feel better tomorrow. You are a pioneer!