Excellent review of what you have had to deal with and to clarify a point you made earlier that this is cellular and I back it with what I have been doing in terms of preventative medicine, my own way to maintain youth and health. First of all my skin and my body looks like I am 40 years old if that.... what I have developed as a Pre-plan is this, I take Basis from The Elysium group that increases the NAD factor in every cell to 40% of what would be there if I was 40, I am 64.... here is a review and a link....

"The one daily supplement your cells need. Cells need the coenzyme NAD+ to function, and NAD+ declines as we age. Basis is clinically proven to increase NAD+ levels." They have done human trials and it has worked.... in every cell as a potential for regenesis of each cell...... This group has five Nobel Laureates working on this, all in the field of anti-aging...

Two; I take LifePak Nano which is described in this way....... Nourishes and protects cells, tissues, and organs in the body with the specific purpose to guard against the ravages of aging each day of your lifespan* Superior bioavailability with CR-6 Lipo Nutrients™ enhances uptake from the gut into the bloodstream and body for maximum anti-aging benefits* Advanced anti-aging formula helps protect the body with key nutrients such as Nano CoQ10™ and nano carotenoids* Helps maintain normal inflammatory responses in the body* Feeds and helps protect the brain with DHA and EPA (two CR-6 LipoNutrient™ softgels contain the same amount of EPA and DHA as two Marine Omega softgels)* Offers superior DNA protection against damaging free radical attacks by providing the body with important antioxidants and phytonutrients such as alpha-lipoic acid and catechins* Protects cell health with an antioxidant defense network* Helps protect cardiovascular health with a comprehensive blend of omega-3 fatty acids and other nutrients Provides comprehensive bone nutrition support* Promotes healthy immune function" Supports normal blood sugar metabolism*
Corrects nutritional deficiencies* SCS certified..... https://www.nuskin.com/en_US/products/shop/shop_all/lifepak/01003610.html.....

I really think by following this routine I have put my immune system into Over-Drive and someone in like a Mayo type setting needs to look into this, because I believe the Over-Drive status of each cell has contributed significantly to this and if this proves to be right, treatment made available to every suffering from having this ripping the life and functionality out of people like us with this insidious disease or diseases plus ....

Your thoughts.....

Thank you Peach Barbara (@peach414144) for the kind words. I think when we are able to share with each other and know we are not alone it's a help to us all. Unfortunately I don't have any suggestions for a knee brace. Do they have any medical supply stores near you? The only reason I mention that is that I went to one when I was looking for a back support belt and didn't like the ones the local sports equipment outlets had. I was surprised by the different equipment the medical store had (not sure why I was surprised though - should have expected it). Mayo Clinic has some information on knee braces for osteoarthritis that may be helpful if you are shopping for one:
https://www.mayoclinic.org/tests-procedures/knee-braces/about/pac-20384791

John

Reagan (@reagan1mc), thank you for the details and the link. I take some high quality over the counter vitamins and supplements that sound similar. The main ones being Sodium Stabilized R ALA ( 600 mg morning and evening), Carlson's Fish Oil (800 EPA/500 DHA - 2 tsp morning and evening), Manitoba Harvest Organic Hemp Seed Oil (1-1/2 oz each morning), 5000 IU D3 (morning and evening), 2 - 200 mg Magnesium tablets (morning and evening), 1000 mg Brewers Yeast (2 tablets morning only), 500 mg Acetyl L Carnatine, B12 - 2 3000 mcg capsules (morning and evening), Biotin (2 x 10,000 mcg taken mid-day). All that is to help with my PN.

I also take CoQ10 - 100 mg daily, Gaia HerbsTumeric Supreme capsules, and AREDs 2 Eye vitamins. I'm still trying to find out what a therapeutic dosage is for CoQ10 to see if it would have any advantages for what ails me. I'm hoping to get some quite time later this weekend and will take a look the link you shared.

A local man that walked into our office last Thursday with bounce like a spring chicken. I would have guessed his age in his early 70s and extremely good health. One of the folks in our office told me he turns 100 this April. Yikes!...and then there is me. Hey, at least I have my mind.

Hope you have a great weekend.

John

@johnbishop hey John I just went online yesterday and I saw this doctor talking about having ms and how she overcame it. She also has online classes. I was a little leary about this but I am glad you mention this Dr Wahl. I guess now I will take some of her classes. Thanks John

john have your supplements done anything for your pn?

Hi @njcarolnjn, yes the supplements I'm taking have helped. I started taking them in Sept 2016 and when I started the numbness from the neuropathy was just below both knees. By Dec 2016 the numbness seemed to be just above the ankle. Not much progress since then but I'm OK with it if if's my new normal as it's not progressing anymore like it was before so I know it's helping. I'm fortunate that I do not have pain with my neuropathy. There are days when I feel a little tingling like the nerves are starting to wake up but it's really hard to tell and subjective on my part. I can tell you that I can now rub my calves a little softly and feel the nerves down into the bottom of my feet tingling which is kind of weird and I've never felt that before this past couple of months so don't know if it's a new indication of the nerves being repaired.

You can read my full story here if you would like the full version for my peripheral neuropathy:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=43#comment-65985

Do you have pain with your neuropathy?

John

Hi Lisa @techi, I haven't taken any of her classes but I've listened to a few of her YouTube videos. She has her own YouTube channel and offers a lot of different videos. You can just do a search for her name on YouTube and it will bring up her stuff. Her story of curing the symptoms of her MS is amazing. She says she still has the disease but she has been able to live a normal life after being in a wheel chair for a long time. I did buy a soft copy of her book and have it on my iPad. She has some good smoothie recipes in the book ☺

John

Although looked down on by many, I believe strongly in the power of the mind over the body which it is a part of, since I am a student of Philosophy and History and was taught by studying Baruch Spinoza, the great 18th century thinker, who saw clearly what cognitive psychologist now know to be true, replace a negative thought and or emotion, with a stronger more positive one.

One biographer said of Spinoza..... "To my mind, although Spinoza lived and thought long before Darwin, Freud, Einstein, and the startling implications of quantum theory, he had a vision of truth beyond what is normally granted to human beings." That he did....

So, when I start what I see as stinking or negative thinking, I retreat in the a quiet place inside I have cultivated a calm space in the storm...... this refuge I suggest one seek, because in fighting this insidious ailment, one needs all the peace of mind, stresslessness, focus, we can find....

Reagan, you have hit the nail on the head so to speak. There is power in positive thinking. We listened to a speaker last year that made me laugh as well as think -- Dr. Amit Sood. He has some short videos on his website http://stressfree.org/ that does a great job of explaining how the brain works. Here's one of my favorite:

John

@reagan1mc, what do you think the Spinoza biographer meant by "he (Spinoza) had a vision of truth beyond what is normally granted to human beings." Did the author think Spinoza's concept of reality was better (more reliable) than those of Darwin, Freud, Einstein, and the fellowship that hatched quantum theory over the past century? Did Spinoza have an evaluation framework for differentiating negative thoughts and emotions from positive ones, particularly on the basis of their relative strength or weakness?

I deeply appreciate that you take the time and invest the effort in evaluating your own thinking, so that you know when you are drifting away from reason or reality. Can you help us develop this essential (and presumably rigorous and subjective) process? Given the horrid devaluation of reality these days, all humanity must become experts in separating fact from fantasy or faith.