Treatment for chronic Epstein-Barr virus (EBV)

Have you had a CT scan done? I went through something similar and through a CT scan they discovered enlarged lymph nodes throughout my body. Had bone marrow and lymph node biopsies and tons of different blood work. Never remember having mono but somehow the EBV virus was reactivated and affected my liver and spleen. Lost a lot of weight suddenly and had two bouts of jaundice. Hope you get this resolved. It took many hematologists to figure my case.

I passed out and hit my head about a year ago. I spent two days in the hospital. They ran bloodwork and did a CT Scan. I was told everything was normal. When I went home and continued to get worse that’s when I saw a Function Medicine specialist. They ran the tests for EBV which came back positive with very high numbers.
I haven’t been able to get this virus into remission and I just continue down this road of exhaustion. I also still had a couple of markers for Lyme in my blood which I was told don’t really mean anything since there were only two. I’ve pretty much given up and just try to understand my new normal and do the best I can.
I was told early on I was depressed and offered antidepressants. I felt my depression was stemming from my life falling apart from being sick. I also had severe anxiety, and again it felt related to the illness. Now that I’ve accepted my new normal, I still feel sadness, but it’s not the same as depression and anxiety. It’s one day at a time and acceptance has been a slow process, but it helps deal with the pain of what my life has become. Some days are better than others.

It is so depressing to not get the answers or a doctor that does not pursue further for a diagnosis. I spent over a year going to so many different doctors. One thing I can assure you of is to seek out the Lord and trust He will take care of you. It will help lessen your worries and insomnia. I will pray for you to find answers and support to get healthy again.

How are you doing, @milanocookie? Did you get to see an infectious disease specialist?

My son has had every possible test done by immunologist, infectious disease, internal medicine and neurology. The only conclusion that any of these Doctors came up with, was the neurologist. She said that his autonomic nervous system has been damaged from the EBV, which is causing..... adrenal fatigue, orthostatic hypotension, heart rate variability issues, GI issues, headaches. She started him on Alpha Lipoic Acid back in November to reverse the damage and has been experimenting with drugs like.... Mestinon, Midodrine, Florinef and Bethanechol. He couldn't take the Mestinon, due to loss of appetite and loosing weight. Nor could he take the Midodrine, due to it raising his blood pressure too high. She has now started him on the bethanechol and will be adding in Northera soon. He still takes the Florinef, as well. His fatigue has gotten even worse than it was when we brought him home from school and I didn't think that was possible. He has no life at 18.... doesn't feel like doing anything and never leaves the house, because he's so week and tired. He just never feels well. His Neurologist keeps telling us that it will take time with the meds, but she is confident that she can help him. She has a proven history of treating past patients with the same illness. It's hard to be optimistic about any treatment at this time, because he has been dealing with doctors and the runaround for over 2 years now. How are you doing with the illness?

Hello Sue. Wow yeah reading Anthony Williams book is how I found I might have EBV. I T\also had been tested
( thoroughly because I'm also a childhood cancer survivor) for 20+ years and I was apparently ok or 'just getting older' ( love that one). I had to order my doctor to have my blood antibodies tested here so I could finally valid my suspiscon.
So yes I'm eating healthy, lots of natural supplements - I love using the 'healing foods an herbs' list to create my own recipes. What is is/are Asea redox molecules?
Molly

I got Covid when I was 4 months postpartum with my only child. It was an incredibly stressful time and the Covid reactivated Epstein Barr virus. I have been ill for 16 months. It has caused Hashimoto’s and celiac. All most doctors have wanted to do was put my on levothyroxine and call it a day. I found a functional medicine doctor who has given me neurological exercises and put me on a homeopathic protocol specifically for Epstein Barr Virus. He also has me taking a repairative digestive powder in the morning and at night (glutamine, aloe, ginger, etc), monolauric acid, l-lysine, IV glutathione, a supplement to support my B-cell/th2 response (my autoimmune response is Th1 dominant), vitamin D and a cream that absorbs through my skin and supports my adrenals during the day as well as another supplement to support my adrenals at night. They have me on an autoimmune paleo diet during this 8 week protocol, after which we will be adding eliminated foods back in one at a time. They have told me that gluten is often not okay for anyone with autoimmune issues or chronic epstein barr virus to consume again because it is so inflammatory. Since Covid, there has been a huge increase in reactivated Epstein Barr virus. EBV is the root cause of many adult chronic health problems. My best suggestion for others suffering from this - find an experienced functional medicine doctor with knowledge on EBV in your area. Since starting the protocol my body has been purging. It is not easy but I have a young daughter and I want to be there for her, I want to raise her. The goal is to get the EBV to go into latency again. Stress management, good sleep, nutrition and detox are all part of maintenance once the chronic reactivated EBV is addressed. If it is never addressed, it will continue to wreak havoc on you. Look into Dr. Kharrazian’s books for good info. Good luck on your journey!

I hope this message finds everyone in here well and their loved ones as well as can be. Please consider this protocol: cbd tincture for headaches and nerve pain, gromwell root tincture for ebv replication suppressant (add pure shikonin to tincture if symptoms are severe), L- lysine daily and acetaminophen for fever and pain mgmt. You should notice lymph node swelling reduction pretty quickly with the gromwell which has really low toxicity and also helps prevent damage to other vital organs.

90% of the world's population has this virus and I honestly believe it's the root cause of most fatal diseases. But because the greater majority seem fine we ignore the few who suffer tremendously, that is until the majority gets sick later in life at which point the medical professionals don't understand that ebv is the root cause of your ms or lymphoma or heart failure.

Read the studies, you know what's best for you, and keep on fighting.