Seeking information from people who have had meningioma biopsed

Posted by elisabeth007 @elisabeth007, May 30 7:54am

i would greatly appreciating hearing from
those who had their meningioma biopsed. Thank you.

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elisabeth007 | @elisabeth007 | Jun 11 8:57am

In reply to @suemarie3 "I had the craniotomy, Don’t think I could tolerate going thru my nose!" + (show)

i’m interested to hear why you think crainiotomy was preferable to surgery through your nasal canal?

elisabeth007 | @elisabeth007 | Jun 12 8:16am

In reply to @suemarie3 "No matter if it is benign or malignant, doesn’t it still have to be removed? Don’t..." + (show)

it has been watched since 2018 and i was just told to start talking to neuro-surgeons less than 6 weeks ago. My body has produced many growths over the years…only a couple needed to be removed. i’m at high risk of complications and in no rush to do anything drastic

suemarie3 | @suemarie3 | Jun 12 12:28pm

In reply to @elisabeth007 "it has been watched since 2018 and i was just told to start talking to neuro-surgeons..." + (show)

Best wishes for you!
I had no symptoms from my tumor except a little dizziness when I would stand up. Assumed it was sinus or allergy related.
Turned out to be a malignant fibrous tumor of CNS, grade 3.
Craniotomy and 6 weeks of daily radiation.

suemarie3 | @suemarie3 | Jun 12 12:34pm

In reply to @elisabeth007 "i’m interested to hear why you think crainiotomy was preferable to surgery through your nasal canal?" + (show)

I was not offered the nasal approach.
They thought my tumor was benign and the surgeon said it would be a normal procedure.
Turned out the pathology came back malignant.

elisabeth007 | @elisabeth007 | Jun 13 8:10am

In reply to @suemarie3 "I was not offered the nasal approach. They thought my tumor was benign and the surgeon..." + (show)

i think my drs were vert honest re potential of malignancy. They said you can only tell by seeing biopsy results

elisabeth007 | @elisabeth007 | Jun 14 7:32am

In reply to @suemarie3 "I was not offered the nasal approach. They thought my tumor was benign and the surgeon..." + (show)

seems very few places do nasal technique. Mayo does. i do not know if i’m a candidate for it. it seems the general assumption is that most memingiomas are benign. after the last mri my neuro-optjamologist did not reiterate that meningioma’s are usually benign. He made me a neurosurgeon appt

jasonl1012 | @jasonl1012 | Jun 15 9:36am

How can I find an excellent neurosurgeon that does a lot of the intranasal technique? I read a research paper that showed complication rates drop significantly if they perform this over 100 times per year. Anybody know how to find who does these a lot?

jet44 | @jet44 | Jun 15 9:43am

In reply to @jasonl1012 "How can I find an excellent neurosurgeon that does a lot of the intranasal technique? I..." + (show)

Hi, where do you live? Dr. Amin Javer is an amazing neurosurgeon in BC Canada.
https://www.stpaulssinuscentre.com/doctors/dr-amin-javer/

mkoch | @mkoch | Jun 15 10:03am

Jasonl1012: First of all, did a doctor tell you that you are a candidate for the intranasal approach? From what I've read, that technique is only available if the meningioma is located in particular areas of the brain. Secondly, you would most likely find a neurosurgeon who does a lot of intranasal surgeries at the major medical centers throughout the country, Mayo, Stanford, UCSF, Penn., Cleveland Clinic, MD Anderson Clinic in Dallas, etc. If those locations are too far away from your comfort zone to travel to, I would think you would find such a specialist at most university associated hospitals. Your information that the surgery will statistically be more successful if the doctor has done several is valid and a fair question to ask during your consultation.